Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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I have Neuropathy in my feet & legs & I am too scared to get the vaccine . I also have other health issues. Do you think I should wait & see what happens?

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I received my 2nd Pfizer COVID vaccine Feb 26th and the only side effect I had was extreme fatigue the following day. My wife had the same symptoms after getting her 2nd shot last Thursday.

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@johnbishop, I welcomed the news about the side effects of your second Pfizer vaccine. We just received our first and I will not be afraid of that second dose. Extreme fatigue for a day is a small price to pay for protection. Let us hope everyone receives the vaccine. We need to stop this virus so we can resume our lives and enjoy each other's company! Thanks for posting this message of hope. Take care, @joybringer1

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Profile picture for joeyd5641 @joeyd5641

Hi. Has your nueropathy flare resolved ? did you get the second shot?

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It’s been 12 days since my second Pfizer vaccine. (I did report the reaction to Pfizer after the 1st shot. They recorded it but claimed there was no indications of any neurological problems from the vaccine ). My neuropathy sx have dialed back some but are still substantially worse than before the shots. I have also had brain fog since the 1st shot as well. Since I have non-length dependent neuropathy I have wondered if the brain fog could be a neuropathic sx as well. I just hope the sx continue to dial back.

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Profile picture for joybringer1 @joybringer1

@johnbishop, I welcomed the news about the side effects of your second Pfizer vaccine. We just received our first and I will not be afraid of that second dose. Extreme fatigue for a day is a small price to pay for protection. Let us hope everyone receives the vaccine. We need to stop this virus so we can resume our lives and enjoy each other's company! Thanks for posting this message of hope. Take care, @joybringer1

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Unfortunately, I think the jury is still out. I mentioned previously that my neuropathy symptoms increased after the first Pfizer shot, but I decided to go ahead not knowing if it was truly the vaccine or just the normal development of symptoms for my body. Plus, I am fully in support of getting the vaccine to help our world get out of this pandemic. I had my second shot on Thursday. Normal minor flu like response, however, my neuropathy, plus joint and muscle pain, has increased again. I hope that some researchers are going to investigate these occurrences, as this second hike in symptoms is even worse than the first. Clearly not everyone is having this sort of reaction, but it seems there are enough of us that it warrants attention.

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Profile picture for athenalee @athenalee

Unfortunately, I think the jury is still out. I mentioned previously that my neuropathy symptoms increased after the first Pfizer shot, but I decided to go ahead not knowing if it was truly the vaccine or just the normal development of symptoms for my body. Plus, I am fully in support of getting the vaccine to help our world get out of this pandemic. I had my second shot on Thursday. Normal minor flu like response, however, my neuropathy, plus joint and muscle pain, has increased again. I hope that some researchers are going to investigate these occurrences, as this second hike in symptoms is even worse than the first. Clearly not everyone is having this sort of reaction, but it seems there are enough of us that it warrants attention.

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I’ve had the same experience unfortunately. ☹️ Helen

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I have not heard or read about warning signs from neurologists about side effects from the covid vaccine. People with radiculopathy and neuropaty live with their condition well aware of any changes to the contrary. Okay, so the vaccine is great and keeps us alive but do all these negative and strange symptoms after the vaccine go away, do damage or what? My personal experience after the first shot was truly frightening. Should one just dismiss this and go ahead with the full procedure? It seems there is no guidance to these unknowns. I feel like a guinea pig.

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I agree. But it’s vital that anyone experiencing unusual symptoms file an event report with VAERS - https://vaers.hhs.gov/reportevent.html
If they hear from us they’ll have to investigate. I don’t look at myself as a guinea pig, as I chose to get the vaccine. And, I understand the urgency in developing the vaccine. Nonetheless, I do want answers as to the long term impact on my body from the vaccine.

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Profile picture for joybringer1 @joybringer1

@johnbishop, I welcomed the news about the side effects of your second Pfizer vaccine. We just received our first and I will not be afraid of that second dose. Extreme fatigue for a day is a small price to pay for protection. Let us hope everyone receives the vaccine. We need to stop this virus so we can resume our lives and enjoy each other's company! Thanks for posting this message of hope. Take care, @joybringer1

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@joybringer I'm an 85 year old Canadian, living in an Assisted Living seniors' residence. I've got GCA, Diabetes, Neuropathy, and several other autoimmune conditions. I received my first Moderna dose in January, along with all the other seniors in my building. Of all 50 of us, with varying degrees of illness, disability and age, NONE of us had a bad reaction, other than a sore arm for a day or so. We were scheduled to receive our second Covid shot on January 7th, but our provincial Covid expert, Dr. Bonnie Henry, advised the new protocol is to wait 16 weeks between the first and second dose. We're all somewhat troubled and disappointed by this decision, but feel we have to trust scientific evidence in this regard. My seniors' residence is one of the very few that have not had a single case of Covid, thanks to careful Executive Staff management of our building, plus our residents all adhering to the stringent Covid rules we all know so well. Just this week, we've been in Lockdown again, due to alarming new outbreaks in our city. We've had no visitors, no personal outings, no gatherings, for a year now, but we have each other, and that's good enough, so long as we're safe from Covid. It is what it is, folks. We'd rather have the side effects from the vaccine than die an awful death from that disease.
I hope you'll decide to get your Covid vaccinations. Warm regards, Laurie

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Profile picture for artist01 @artist01

@joybringer I'm an 85 year old Canadian, living in an Assisted Living seniors' residence. I've got GCA, Diabetes, Neuropathy, and several other autoimmune conditions. I received my first Moderna dose in January, along with all the other seniors in my building. Of all 50 of us, with varying degrees of illness, disability and age, NONE of us had a bad reaction, other than a sore arm for a day or so. We were scheduled to receive our second Covid shot on January 7th, but our provincial Covid expert, Dr. Bonnie Henry, advised the new protocol is to wait 16 weeks between the first and second dose. We're all somewhat troubled and disappointed by this decision, but feel we have to trust scientific evidence in this regard. My seniors' residence is one of the very few that have not had a single case of Covid, thanks to careful Executive Staff management of our building, plus our residents all adhering to the stringent Covid rules we all know so well. Just this week, we've been in Lockdown again, due to alarming new outbreaks in our city. We've had no visitors, no personal outings, no gatherings, for a year now, but we have each other, and that's good enough, so long as we're safe from Covid. It is what it is, folks. We'd rather have the side effects from the vaccine than die an awful death from that disease.
I hope you'll decide to get your Covid vaccinations. Warm regards, Laurie

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@artist01, Thank you for your concern. My husband and I received our first shots of Pfizer last week. Other than a sore arm (which I expected) and a little fatigue, we did fine. I am now concerned about you. The Moderna vaccine's second dose should be 28 days apart or up to six weeks apart. I cannot understand why your COVID expert says to wait 16 weeks. I wonder if anyone else has experienced this long wait and what reasons are given. I wish you well and hope you will receive your second dose earlier than expected. With all good wishes, @joybringer

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