@zoelife Their symptoms sound extremely difficult to manage and I hope they will soon find answers, treatment, and relief.

I'd like to extend my welcome to Mayo Clinic Connect and concur with @merpreb that members are not medically trained but they are here to support and share their experiences. It sounds like @merpreb has a lot of experience on this topic.

I'd like to invite members like @bizzy12 @nla4625 @fracturedd @oakbourne @spudmato @janeellen @lori01 @hopeful33250 to join the conversation, as they have recently discussed Lung Health and may be able to offer support on this journey.

I also think it is good you are getting a second opinion.

May I ask if the second opinion is at a specialty or teaching hospital?