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@naney Welcome to Mayo Clinic Connect. You have been to 20 doctors and you still do not have a resolution to your sinus issue. It sounds like your sinus issue is greatly effecting your quality of life and feel desperate for answers.
Connect is a place where members can help other members through information giving, experience sharing, and emotional support.
Below I have linked other discussions where members like @eal @cblowers1 @amandabanana80 @beebuzz @squirt0104 @coco1142 @lioness @conniegh have discussed related topics.
- Do I have an issue with my nose? It’s always runny and bothering me://connect.mayoclinic.org/discussion/do-i-have-an-issue-with-my-nose-its-bothering-me-so-much/
- Rosai-Dorfman Disease (Sinus histiocytosis) https://connect.mayoclinic.org/discussion/rossi-dorfman-diseasediseasesinus-histiocytosis/
- Sore throat, sinus pain, fatigue, low fever & feeling miserablehttps://connect.mayoclinic.org/discussion/sore-throat-sinus-pain-fatigue-low-fever-feeling-miserable/
Other members like @learningstudent @bride @nrd1 @bwilliams61 @destinyh96 @drumline7860 @mrsworm12 have also discussed undiagnosed sinus/ENT issues.
May I ask how many of the 20 doctors were ENT doctors, what kinds of diagnostics were done, and were any of the doctor visits at a specialist or teaching hospital?
Replies to "@naney Welcome to Mayo Clinic Connect. You have been to 20 doctors and you still do..."
@nanny Thanks Erika for giving me this opportunity to talk with nanny about this issue. Nanny do you have any ear issues? WHen I was sent to a ventibular ear specialist it was because of not only a lot of nasal drainage but dizziness . Nothing was found but my ENT did tell me to use a saline wash in my nose and gave me some ear exercises to do . I don't know if these would help you but with my problem it did help. I still have some nasal drainage thick at times but its when I also have a head cold to clear up . But I still wash out my sinuses most days in morning before I eat .
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I am so happy you replied! I’ve been to 17 ENT Drs.! Not enough ?I really have no life with this. I spend my day on the couch .... just breathing! I went to Penn ENT and Temple ENT. Also to Jefferson. I’ve had CT scans done. There’s nothing wrong in my nose/ sinus ! I wish there’d be at least a reason. I don’t know how I can keep this up? I’m wondering if a sinus research center could help? Ideas ?
Again....thank you!