They found a mass: How do you cope with anxiety and all the tests etc?

Had the appt with a thoracic surgeon today. He was very open, honest and answered all of our questions. Long story short, he did not recommend pleurodesis because of the amount of fluid still on the lung after having the pleurx catheter in place since Dec 2019. He recommended the Mayo Clinic and consulting my primary med team upon returning to our home state. Nor did he recommend lung surgery because, in his words, you have beat the odds already, are doing great, so why take a chance of not getting off the operating table alive. Keep doing what you are doing!!! We were pleased with the consult.

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Hello Nancy, you are so nice to ask how I am doing, Tomorrow is the big day I go to the Hemo Dr. and find out the results of the Pet scan and MRI and then find out what treatments are right for me, I tried not thinking about it that I still am in control of my life and it hasn't changed yet! but the last couple days my head feels like remember those spinning tin tops that is how I feel and I can't get it to stop! you can only read so much and then it is time for a cocktail, sure hope I get some good news that it has not spread to brain or bones . oh my cocktails are orange juice haven't drank in 20 yrs and no smoking for 3 yrs, hope they can figure out a treatment that does not upset my red blood count I also have MDS of the red count only. How are you doing hope you are feeling fine and big hugs for thinking about me.

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Hello Nancy, you are so nice to ask how I am doing, Tomorrow is the big day I go to the Hemo Dr. and find out the results of the Pet scan and MRI and then find out what treatments are right for me, I tried not thinking about it that I still am in control of my life and it hasn't changed yet! but the last couple days my head feels like remember those spinning tin tops that is how I feel and I can't get it to stop! you can only read so much and then it is time for a cocktail, sure hope I get some good news that it has not spread to brain or bones . oh my cocktails are orange juice haven't drank in 20 yrs and no smoking for 3 yrs, hope they can figure out a treatment that does not upset my red blood count I also have MDS of the red count only. How are you doing hope you are feeling fine and big hugs for thinking about me.

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@loula Thanks for asking. I am doing well. Like the rest of the world I am grateful to be in the process of getting vaccines.
It sounds to me like you are doing just fine. I have one thing to mention from your reply. You say that being in control of your life “hasn’t changed yet”. Just know that it doesn’t have to change. You will always be in charge of the treatment options that are given to you. That does not mean decisions will be easy or comfortable, but just make sure they are always informed. I look forward to hearing from you again. Peace, Nancy

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Hello Nancy, Well yesterday was my day with the Doctor to find out results, He said my MRI came back no brain tumors , but the Pet scan showed two spots on my liver that they want to do a biopsy of. I am stage 4 because of this, they will put a port in my chest when I go for the biopsy, But next Tuesday I go and talk to someone about the chemo. Injections that start next Wednesday, Taxol,Carboplatin, Keytruda. I believe it is four rounds of that but not sure will check on that. Then when that is over I will stay on Keytrurda and see how that works out for me, the checkout lady told me that these Injections usually take 6 hours. I ask about survival and it is incurable 1 to 1 1/2yrs but if the chemo and keytruda work as they are hoping then maybe longer really do not know. So I am in shock a lot to absorb and if anyone has any information on Taxol, Carboplatin, Keytruda please fill me in on it. it is going to take a lot of adjusting to this but I am not going to give up as long as I am able to take care of myself I have a good cat named Floyd he is 3 yrs old, and keeps me happy, I will fight this and give it my all. I think it is the shock of the doctor telling me yes this is going to be what kills you eventually. There is always going to be something that kills us so we all are in the same boat, not the best news to get but I am alive and going to try my best to get through this.
Stay Safe and Healthy.
Cynde

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Hi,
I have recurrent endometrial cancer and relieving Carbo-Taxol chemo every 3 weeks. No Keytruda at this time.
I do ice my feet and hands for the three hours of Taxol to try to keep from getting neuropathy. I didn’t do it the first time, we did the second and third time and it helped me immensely.
Also, I would ask for a prescription for nausea just in case.
And any other tips for just in case.
Drink lots of fluids all day and night when you wake up to per, take a sip.
I hope this helps

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Hi,
I have recurrent endometrial cancer and relieving Carbo-Taxol chemo every 3 weeks. No Keytruda at this time.
I do ice my feet and hands for the three hours of Taxol to try to keep from getting neuropathy. I didn’t do it the first time, we did the second and third time and it helped me immensely.
Also, I would ask for a prescription for nausea just in case.
And any other tips for just in case.
Drink lots of fluids all day and night when you wake up to per, take a sip.
I hope this helps

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thanks for the tip - so just put some ice in a tub and put your feet in there and how bout ice in plastic gloves for hands, do you do this before you go for a treatment or afterwards? does the carbo-Taxol make you sick are you able to make your own dinner and take a shower or our you to sick they told me about anti nausea meds, I m wondering if you are able to live a normal life after this injection it is all so new so all the news you can tell me please do. Fat fingers when you wake up how long does that last? Miriam hope I am not going on and on but I sure can use any info you can give me. I will get 4 treatments I believe 3 weeks apart.

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