Benign paroxysmal positional vertigo: What has helped you?

Posted by larryg333 @larryg333, Dec 29, 2020

Believe from my symptoms that I've got BPPV. When I turn my head to the right side in bed, the room appears to spin and lasts a few seconds (less than 10 seconds). Also experience the same symptom with certain head movements (eg, looking down or up while standing).

Has anyone else in the group been diagnosed with BPPV? Has anyone corrected the prob by using the series of maneuvers at the link below, or other similar maneuvers?
https://www.google.com/search?q=bppv&rlz=1C1GCEA_enUS933US933&oq=bppv&aqs=chrome
/LarryG333

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@larryg333- Sounds like given your history and knowledge you have a good grasp on the TN issues then. For BPPV you can see a PT or Chiro. They can help you with the maneuvers to rebalance the your system.

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@nrd1

@larryg333- Sounds like given your history and knowledge you have a good grasp on the TN issues then. For BPPV you can see a PT or Chiro. They can help you with the maneuvers to rebalance the your system.

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Appreciate the advice, N. Gracias again!

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@tootstilbury

Tootsbury......l believe that is my name for this Site.....I have been a member for about a year but never sent a message. BUT finally my Catagory Has Come Up. I'll try to be Short....about 5 years ago (now 85) I started getting strange feelings on top of my head, it progressed to slight dizziness...Dr had no "clue". Had MRI ...Normal....dizziness Increased....year later another MRI...Normal....no Neurologist where I lived so moved to larger City different Province in Canada. Saw Neurologist,another MRI..normal!!! Dizziness now sometimes Extreme ....All SENSATIONS NOW ON RIGHT SIDE of Head Now Pain Extends down side of head to right Ear and Jaw.......Neurologist Gave me Prednisone...woke up @ 3 am with EXTREME Pain from Top of Head to right foot....now take no meds....HELP NEEDED

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Hi, Toots. Thank you for sharing your story.

So sorry to hear that, after all this time, you're still experiencing these painful sensations.

Does the pain begin at the head, then travel throughout your torso to / through your right leg and to the foot? Puzzling symptoms!

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@larryg333

Hi, Toots. Thank you for sharing your story.

So sorry to hear that, after all this time, you're still experiencing these painful sensations.

Does the pain begin at the head, then travel throughout your torso to / through your right leg and to the foot? Puzzling symptoms!

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Thanks for the question....the pain from my head to my toe was from taking Prednisone!! The pain lately is from top of head,right side to ear and into my jaw, if standing... very dizzy also so at 85 I spend most of the time on my bed where I am safe so I'm missing a lot of activities in this Seniors
Residence. Trying to find a Doctor to help but here in Canada although we don't pay for Doctors we
Sure Have to WAIT...........

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Hey there, Toots.

Just taking a stab here: This latest description of your pain just may be TN related. Hope you get to see the doc soon, and perhaps he can do a proper work-up that pinpoints the root cause of your symptoms.

Good luck... and HNY!

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I have not corrected the condition, but I haven't connected with anyone else who has this particular issue before. It brings me to tears. I'm not the only one.

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Hello and Welcome to Mayo Connect. We are a community of people living with a wide variety of diseases and conditions, who share our stories and try to help one another in our journeys. We are not medical professionals, so we don't provide medical advice. However we do willingly share what has worked or not worked for us as individuals, make suggestions about how to be an active participant in your own care, and provide a group of people who understand what you are going through. If you read this thread, you will see I have had an intermittent case of BPPV for many years, and in just the past 3 years I have learned a working strategy for living with it.

Can you tell us a little about yourself, and your experience with BPPV?
Sue

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Hi, folks. I posted a recent update to my status (now BPPV-free), but I don't see that post.

Happy to report that my symptoms have gone bye-bye. Was about to follow through with the Epley maneuvers this past weekend, but then experienced three consecutive days without the spinning.

So... my symptoms left in the same manner they arrived... no apparent involvement from moi! Not complaining.

Thank you all for your caring, and sharing of info... and your assistance.

HNY to all... health and happiness!

/LarryG

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@larryg333-Great to hear. The body is amazing and complex at the same time. I like your “wait and see” approach. Because ultimately it is our mind that connects to the body for most healing. Best to stay away from allowing others to intervene on that great innate system when you can. Where the mind goes, the energy flows.
Take care!

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@sueinmn

Hi Larry - the problem you describe does sound like BPPV. I have had it for many years, and regularly use the Epley maneuver to get over (or sometimes prevent) a spell of vertigo. It is very helpful to watch a you Tube or have a therapist guide you through the maneuver a few times to make sure you have it right.
When I get an episode, or feel one coming, I immediately do the Epley, then repeat it ay bedtime and in the morning for 2 days after dizziness is gone. If the Epley maneuver doesn't help, you may need to see an ENT for further diagnosis.
Letus know if it helps.
Sue

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Hi, I had a couple of episodes of BPPV. It was scary but I was relieved to be told that it rarely represents a major medical problem, (whether this was correct or not). I was also told that it can be related to vitamin d deficiency. I didn't pay attention at the time but later when treated for osteopenia I started taking calcium and a low dose (400 units) Vit D. Since then the BPPV has not returned. It might be worth checking Vitamin D levels and supplementing if that is indicated.

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