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After Surgery Complication: Faitigue nose ear and throat problems
Ear, Nose & Throat (ENT) | Last Active: Mar 1, 2021 | Replies (26)Comment receiving replies
@lorianz Welcome to Mayo Clinic Connect, a place to give and get support.
You are having multiple medical issues and the treatments you are receiving is not working.
You may find the lung health and chronic pain group helpful and I have linked it below.
- Lung Health https://connect.mayoclinic.org/group/lung-conditions/
- Chronic Pain https://connect.mayoclinic.org/group/pain/
It can be extremely difficult to treat multiple ailments at one time. I'm wondering if you've considered getting a second opinion and/or going to a hospital system that specializes in coordinating care?
Replies to "@lorianz Welcome to Mayo Clinic Connect, a place to give and get support. You are having..."
Erika, I am still out here floundering around. I filled out an application with Mayo in Rochester. I have been declined. No particular reason was given except that Mayo gets so many applicants that they can’t take in every new patient. I am in the process of getting new specialists. 2, the pulmonologist and rheumatologist are out of my insurance network. I can’t justify paying out of pocket and.... I am not sure about the diagnosis’s they gave me. Do you have any idea why my request to become a patient was declined? So many people who use the Mayo Connect site also are being cared for at Mayo. Any advise would be welcome. Thank you for all you do. Lori
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I really am sorry for my late reply. The most debilitating symptom I have had is just not being able to think. Communicating with all of my doctors is very difficult. I have started writing down the problems I am experiencing and then, before each visit, I dissect my notes so I only share the information for each ailment with the relevant doctor. 5 doctors and all but 2 belong to the same network. Of course that leads to insurance issues. My PCP has to send a “Prior authorization” for each “visit” to the pulmonologist, rheumatologist and now to whoever I find to help my with my Eagles syndrome. Just navigating through all of this has really made dealing with my depression/anxiety and worse of all, the social anxiety I experience, overwhelming.
So, how can I fix this? You suggested a hospital system. I am very interested in Mayo. I have a niece who is a NP with Mayo in Rochester. I have not told my family about my illnesses. If I contacted my niece the cat would be out of the bag. My Social anxiety is that bad. I can’t even talk to my family anymore without panic attacks.
Can you help me? I need a push in the right direction as to how I can access a diagnostic team and become a patient at Mayo. I am not sure about insurance. I don’t want to go anywhere that won’t take my insurance so I suppose that would be the first hurdle. I am so grateful for you and all the Mayo Connect participants. I’ve learned more here than at my doctor appointments.