Proximal junctional kyphosis (PJK)

Posted by ohiogirl @ohiogirl, Dec 20, 2020

Hello, I'm new here and have thoracic spine pain. Already have two fusions: S1-T10 and C3-C7. I live in NW OH and was referred to OSU neuro by ortho. I will have CT in Jan but he suspect PJK. Scared to think of a fusion revision but epidurals and facet injections have not helped.

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Welcome, @ohiogirl. Allow me to bring fellow members @steeldove @lotsofpain @dexan @kayskid @irene5 and @jackl into this discussion as they have also talked about dealing with kyphosis.

I can imagine that you're not looking forward to the prospect of a fusion revision. How is your bone density? What do you currently do to find relief from pain?

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@ohiogirl Have you considered requesting an appointment at Mayo's Department of Pain Medicine?

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Hello! Yes but first I'm going to see a neurosurgeon at Ohio State Univ as he has experience with this. If he can't fix it then it will be Mayo for PM/

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@colleenyoung

Welcome, @ohiogirl. Allow me to bring fellow members @steeldove @lotsofpain @dexan @kayskid @irene5 and @jackl into this discussion as they have also talked about dealing with kyphosis.

I can imagine that you're not looking forward to the prospect of a fusion revision. How is your bone density? What do you currently do to find relief from pain?

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Good morning Colleen! Since two epidurals directly into the T 5-6 where the MRI shows forarmal stenosis gave me no relief and facet injections did not either, I feel I have no other option but to have surgery to get my quality of life back!! I have developed osteoporosis and osteopenia in the last year. I'm 67. I do the Prolia injections as my GP recommended that, I only do OTC which may take the edge off and CBD gummies to relax. Tens unit. Heating pad.

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