Metastatic adenocarcinoma: Treatment and quality of life decisions

@shoop1966, thinking of you and your wife today. I suspect your energies are focused on your wife and your time together. Just wanted to let you know that we're here when you need us.

Hello @earscan
It has been a while since you last posted. How are you doing?

My Wife is back in the hospital with a brain issue. Doctors are not able to find a cause but she did have a 4 minute seizure yesterday morning- up until Monday when she woke up with a severe headache- it was going really well. First Chemo treatment had little side affects and we getting stronger by the day, even gain about 15 lbs back. Doctors are trying to see if Immunotheraphy could have caused the brain swell- thanks for asking. A miracle was in progress till this happened-- leaning on & trusting God in All things.

Thank you Prayers are working!! Just another bump in the road!!

Shoop, My Thoughts, Prayers, and Blessings go to your wife and you!
I have been down that road with chemo! Please Watch her very closely! As I have said on Conect, you in this case have to be her advocate! Demand they figure it out!
Twenty one years ago I let me issues with the chemo slide past! It wasn;t until my wife took me to ER with only a couple hours to live from the chemo that I learned we must stand up to the doctors. I'm in the middle of a "Cause and Affect" with my PCP over why my illness is not getting better, but worse!
PLEASE, PLEASE, Dig deep and get Face to Face and demand answers!
Sending both of you my Prayes, Blessing and Thoughts from The Land of Enchantment!
Sundance(RB)

@shoop1966, how is your wife doing? How are you?

I was able to bring her home last Monday. The brain is still healing from whatever happened but she's getting better each day. We did go ahead and do the 2nd chemo treatment on Friday so we will see what happens. She was very tired this weekend but all of her numbers were very good after the first treatment so we are praying for continued success with no more seizures. Thanks for reaching out and for all the prayers and support!!

Great news, thank you for sharing

@shoop1966, great that chemo can proceed. I too hope for no more seizures. How many treatments are in the treatment plan?

That is so awesome!!! Your story gives all of us hope. How long ago did your brother decide to stop taking treatments?

My doc diagnosed me with terminal lung cancer. The cancer spread from my lungs to my lymph nodes, left kidney and brain. I had 10 days in a row of radiation on my brain and felt like a million bucks when I was done and then COVID hit the very next day. Ugg!! I also had my first chemo treatment at the same time as radiation. My oncologist was shocked at how well my first round of chemo went. My tumors shrunk by half and some disappeared all together. I had to do 4 rounds of that medicine and by the 4th treatment I pretty much felt like I was going to die but it worked so it was worth it. Then he put me on a 'maintenance treatment' of Keytruda only and tumors started growing again so now I'm on another strong chemo regiment until I either go in remission or reach max toxicity level. This treatment I'm on now really eats up my white blood cells and side effects aren't pleasant but I have to keep fighting. My husband and kids can't bare the idea of my passing so young so I'm channeling my inner hippie to keep a positive attitude and reading my bible for strength to do all I can to preserve life until I can't anymore. I like your brothers idea of just stopping treatment and see what happens. I felt much better before I filled my body with God knows what.