← Return to 2nd withdrawal of prednisone after initial Steroid avoidance protocol

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@gingerw

@julieh Welcome to Mayo Connect! Congratulations on your recent transplant!

I would follow the recommendations of your transplant team. You mentioned a Mayo doctor – is that where you were transplanted? They are probably following you for this first year post-transplant, and remember you will have an annual evaluation for the transplant. It seems there are differing protocols at different transplant centers.
Ginger

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Replies to "@julieh Welcome to Mayo Connect! Congratulations on your recent transplant! I would follow the recommendations of..."

Yes, I was transplanted at Mayo Phoenix. The tricky part is I live in Vegas. When I had my last video appointment with Mayo they recommend reducing and then discontinuing prednisone but also defer to my home nephrologist for the final decision. The home nephrologist doesn't like steroid avoidance protocols, but will likely make it my decision and ok it if i oush to follow the Mayo recommendation. Meanwhile my Vegas transplant nephrologist will be managing most of my care. I just have one more mayo appointment at 12 months post and then see them only yearly. I'm just hoping to hear from anyone who may have had this unusual situation where steroids were stopped, started and stopped again successfully. If I could find even one study I'd feel more confident!

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