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Organ Donation and Transplant: What is Your story?
Transplants | Last Active: 5 days ago | Replies (94)Comment receiving replies
@rosemarya Hello Rosrmary. I've been absent for a bit. I've been pondering over sharing my particular story. As you may remember I had every symptom at its worst prior to surgery and subsequent surgeries and ERCP's since. My story is long and really not pleasant. After my last ERCP thd end of June I have still not been well. With 5 bouts of pancreatitis in less than two years my poor body just hasn't had the strength to recover. I still can't eat a regular diet and I'm sick every day. Lately I feel like I did during a bad episode. Forgetful and always dizzy and trembling. I have blood work taken monthly and the results are always ok. I seem to have another lesion or growth on the same arm as the last cancerous growth was removed. I'm being checked for diabetes and the shingles from Feb are surfacing. These are all post transplant problems. So ... for now I'm laying low and doing my best. We're back in lockdown in Ontario so I'm housebound again.
Replies to "@rosemarya Hello Rosrmary. I've been absent for a bit. I've been pondering over sharing my particular..."
@gaylea1 I am truly sorry to hear of the problems you have been having. We all figure that once we have a transplant our problems are behind us but that's not so for everyone, you obviously being one of those people.
Laying low is what we all have to do for now. With your problems will you be able to get the vaccine? If so hopefully that will give you a bit more leeway in being able to do a few non-demanding things. Lockdown is not pleasant for any of us. I find that some days depression suddenly sets in with no provocation.
Stay strong and hopefully, the future will be better for you. We are here for you.
Hugs, JK
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@gaylea1, I am sad to hear that you are still having difficulties. It took great strength and courage for you to post this difficult part of your story here. I want you to know that when you are feeling better, and your body has recovered, that you absolutely must come back to this Discussion and add to your story.
I am trying to preserve this group for stories, so - while you and all of us are housebound, I want you to keep reading the ongoing discussions and join the conversation, or simply enjoy the company of your fellow transplant patients.
We have some newer members in the Liver transplant support group. https://connect.mayoclinic.org/discussion/liver-support-group/
-and -
If you are looking for something to get your mind off your surroundings, here is a discussion group named: Just Want to Talk. You can scroll thru the list, and find topics such as -
Art for Healing
Smile Bringers for Animal Lovers
Journaling - The Write Stuff For You?
The Chat Room: A place to talk about this and that
How about a laugh, (hopefully)
https://connect.mayoclinic.org/group/other/
Peace and hugs.