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Organ Donation and Transplant: What is Your story?

Transplants | Last Active: 5 days ago | Replies (94)

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@jstoll

Scott: I enjoyed your excerpt and looking forward to reading your book when published. I am saving your post so I can look for it. Do you have a publisher yet? So many healthy people experience the same symptoms every day and ignore them. We all have that "this cannot happen to me" because I follow the health guide rules of eating correctly, exercising and stay away from drugs and smoking. What we don't understand is that heart failure can be passed on from generation to generation even to those who follow the rules. Our son, Scott was a prime example. He was forty (40) years old, had his own landscaping business, very active, ran triathlons, and very active with his friends. He had never been overweight and did not take drugs. He had a beer with the guys on the weekends watching football. Can you imagine getting a phone call at work that your son is in ICU on a ventilator because he had dropped dead of heart failure. The ambulance crew brought him back; but it was too late he lost all brain function due to not getting enough oxygen to his brain and organs. We too, like you, stated "this cannot be happening". As the family rushed to his side we were told the sad news and all had to say goodbye to him. My husband just had a heart transplant on October 7th at Mayo Jacksonville. He struggled with congested heart failure for 4 years. In and out of the hospital. The doctors did everything possible to stop these attacks by implanting pacemakers, defibrillators, watchman and he was on a new FDA study for the WISE system. He was the first WISE system implant in Florida. In May the doctors said "it is time for the Mayo as we have done all we can". He will be 74 this November and we knew the cutoff was 75 to be eligible for a transplant. We were lucky as he qualified and Mayo and their due diligence made it happen. We are blessed. Please keeping giving us excerpt of your upcoming book.

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Replies to "Scott: I enjoyed your excerpt and looking forward to reading your book when published. I am..."

What a heart-warming story - full of sadness, but also hope and happiness. I'm so glad to hear your husband received the care he needed at Mayo - they do, indeed, work miracles. Our book will be published next May by Cornell University Press. I will absolutely provide updates to this group, including a sneak peak at the cover art, which we hope to see very soon! Thank you for your encouragement for that project.