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@1nan

@lfevold Hello, Linda. Allow me to introduce myself. Colleen invited me into your conversation because I was diagnosed at Mayo Clinic in Rochester. A high sed rate was red flag on my first visit to a rheumatologist in 2002, and I start my long journey with MGUS and a wonderful oncologist. That year I went to Mayo, was diagnosed there with IgG Kappa Myeloma in 2004. My greatest life blessing is that I am not a worrier, so following smoldering Myeloma until 2016 when I started treatment was an issue only because of monitoring it with periodic tests. Feel free to check out my other posts for my life on Connect since then. We are to eat common sense balanced diet which has been difficult for me for various reasons since treatment started so I concentrate on protein and then fruits and vegetables. Salt and sugar have been additives far too often, but they helped with intake and I reached remission in spite of myself. You are fortunate in that you understand the inns and outs of all the lab work we need to keep an eye on. Understanding that helps us be our own best advocate and I’m sure you will be able to do that. What else might I be able to help you with based on my experience? Nancy

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My husband was diagnosed with Smouldering myeloma. Our life has changed..waiting is awful. trying to do everything we can to restrain, delay disease onset . He’s a scientist and researcher. Seems to us it would be better to treat and stop disease before it explodes.. Is there anything out there to treat it NOW.