Anyone participating in the Tapestry DNA Sequencing Research?

Posted by dazlin @dazlin, Oct 19, 2020

if you have volunteered or declined to participate, I'd like to here your thoughts. I was on the fence, very undecided, yet I decided to go ahead to do it. I have a few low grade health problems im dealing with , and really dont want to hear anymore. That said, I realize this testing may be of great value at some point. Also its strictly voluntary and can be declined at anytime. I sent mine in today.
Whats your thoughts??

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I received my sample kit yesterday and sent it back today. Also filled out a Mayo Clinic Biobank survey that came with it. Since I had previously done the Mayo Clinic GeneGuide test which also used Helix, I had to create a separate account using a different email address which was a little inconvenient. I'm looking forward to seeing the results.

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@johnbishop

I received my sample kit yesterday and sent it back today. Also filled out a Mayo Clinic Biobank survey that came with it. Since I had previously done the Mayo Clinic GeneGuide test which also used Helix, I had to create a separate account using a different email address which was a little inconvenient. I'm looking forward to seeing the results.

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@johnbishop Because of my multiple myeloma, I feel I am not eligible to participate. Dang it.
Ginger

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@gingerw

@johnbishop Because of my multiple myeloma, I feel I am not eligible to participate. Dang it.
Ginger

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@gingerw give it a try - doesn’t cost anything.

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Anyone know how long it takes to receive results?

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Hi. I'm participating in it as well. If my memory serves me right, I believe it's going to be a couple of months before we hear anything back.

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@dazlin

Anyone know how long it takes to receive results?

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@dazlin - I didn't see anything that told me when to expect receiving the results but from the previous two genetic tests I did (Genes for Good -https://genesforgood.sph.umich.edu/ and Mayo Clinic GeneGuide - no longer available), it took about 4 to 6 weeks. I sent my Tapestry kit back last week so will let everyone know when I receive the results. There is also a list of frequently asked questions you may want to review in which I didn't see the question answered.
- https://www.mayo.edu/research/centers-programs/center-individualized-medicine/patient-care/clinical-studies/tapestry-dna-sequencing-research-study/participation/frequently-asked-questions

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@johnbishop

@dazlin - I didn't see anything that told me when to expect receiving the results but from the previous two genetic tests I did (Genes for Good -https://genesforgood.sph.umich.edu/ and Mayo Clinic GeneGuide - no longer available), it took about 4 to 6 weeks. I sent my Tapestry kit back last week so will let everyone know when I receive the results. There is also a list of frequently asked questions you may want to review in which I didn't see the question answered.
- https://www.mayo.edu/research/centers-programs/center-individualized-medicine/patient-care/clinical-studies/tapestry-dna-sequencing-research-study/participation/frequently-asked-questions

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Hi @johnbishop , I looked it over before I sent my test in...im not seeing anywhere a time frame. No big deal...just wanted to know if anyone knows the time frame. Im kinda surprised they dont offer that info. Thx!

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I have participated and received results for both general ancestry and for a specific condition. I learned that I have a gene mutation for high cholesterol which I have been dealing with since it was identified when I was 40. I have received extensive genetic counseling from Mayo about the results and will seek additional information to see if I can benefit from changes in medication. I paid to have the test repeated, a Mayo recommendation, to confirm the Helix results. I also believe my participation can benefit others in the future.

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@birchlaker

I have participated and received results for both general ancestry and for a specific condition. I learned that I have a gene mutation for high cholesterol which I have been dealing with since it was identified when I was 40. I have received extensive genetic counseling from Mayo about the results and will seek additional information to see if I can benefit from changes in medication. I paid to have the test repeated, a Mayo recommendation, to confirm the Helix results. I also believe my participation can benefit others in the future.

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@birchlaker can you tell us how long it took to receive the results once you sent the sample kit back for the Tapestry study?

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@johnbishop

@birchlaker can you tell us how long it took to receive the results once you sent the sample kit back for the Tapestry study?

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It took six weeks.

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