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Bone Marrow Aspiration - Long Term Pain Expecations

Blood Cancers & Disorders | Last Active: Aug 29 11:52am | Replies (45)
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@gmill123

The idea was that you can bank your stem cells while you are healthy. I didn't have any history of blood cancer or anything but I know that they are studying stem cells and I wanted to bank them in case I got covid or something. Prior to the procedure, I was healthy and able to run bike and swim every day with no pain.

Now, after the procedure, I'm in chronic pain from the procedure itself. I haven't been able to think, walk, exercise really in the past 2 months, and am living with constant fear that I'll never be able to walk, run or bike without pain.

I know that everyone on this forum has had worse experiences than this so I feel terrible that this procedure has defeated me.

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Replies to "The idea was that you can bank your stem cells while you are healthy. I didn't..."
lioness | @lioness | Oct 15, 2020

@gmill123 Im so sorry you are now having physical problems do you attribute it all to banking your stem cells? Have you talked to your Dr about this ? It could' ,maybe, just a suggestion Im not familiar with your procedure or stem cells , that there was something else starting to happen in your body that reducing the stem cells brought on? Be your own advocate and talk to the place where you had this done ,your Dr and any specialist you may need to see

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Lori, Volunteer Mentor | @loribmt | Oct 15, 2020

@gmaill123, What we or anyone else have gone through doesn’t in any way diminish what you’re living through. We each have our own personal battles. You obviously felt you were doing something to contribute to your future, if needed. I’m sorry you’re having to deal with this!
In my opinion, I really think you need to contact a reputable facility which does Bone Marrow/Stem Cell procedures such as one of the Mayo Clinic’s, MD Anderson, or someplace with a notable reputation, (Hematology dept) explain what has happened and get an opinion from specialists in the field. Something doesn’t sound right with this entire situation, especially with the doctor who performed the procedure dismissing you after asking too many questions. What doesn’t check with me is that most stem cells are procured peripherally through blood, not through an actual bone marrow specimen. Very little marrow is extracted during an aspiration. Though I do understand even freshly extracted teeth are being stored cryogenically for the small amount of stem cells they hold.
After having 10 bone marrow biopsies, which is a bone marrow aspiration, I have no lingering pain except the last one, 2 weeks ago. Still a bit tender but nothing like what you’re experiencing, that just doesn’t sound normal. I’d also contact a lawyer, check with the BBB and check your doctor’s accreditation and credentials. In a call to Mayo or a reputable clinic, you might want to ask if they’ve ever heard of your clinic. Something just smells fishy. This has impacted your life so negatively, you really need to be aggressive in getting answers. Good luck to you!

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