1. < MAC & Bronchiectasis

Celebrating an antibiotic-free year

Posted by thumperguy @thumperguy, Oct 10, 2020

And I’m convinced 7% nebulized saline did the trick. (Accompanied by percussion vest vibration) And this forum is the place I learned of “The 7% Solution.“ “Don the indebted.”

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

poodledoc | @poodledoc | Nov 19, 2020
In reply to @kathyhg "How big is the incline on the wedge? I got one that was about 5 inches..." + (show)
@kathyhg

How big is the incline on the wedge? I got one that was about 5 inches at the head of the bed and 1 inch at the foot. It is under the mattress and covers the whole area.

My doctor recommended a steeper incline but I felt like I was always slipping down the bed. I have wondered if I should have gotten a steeper incline but sleeping well is a priority for me too! He also recommended no eating or drinking for 3 hours prior to going to bed but I sometimes get sloppy about that, especially if I’m thirsty. The gastro guy I saw similarly wanted me to go on meds but the pulmonologist said not to take them.

This test is to confirm whether or not I have reflux, since it wasn’t checked at the time he gave me the above direction ( I’m assuming that I do but it would be a pleasant surprise if I don’t).

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Kathy, I have that same wedge between my mattress and box springs tapering from 5" to 1", it works fine for me. The wedges that only go to your waist can potentially make things worse by putting a kink in your GI tract, not to mention possibly being hard on your back. I also try not to eat anything 2-3 hrs before bedtime.

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2 replies
gej53 | @gej53 | Nov 19, 2020

Oh my gosh....it is uncanny. Dealing with handling a diet can be challenging too. Makes travelling a worry at times. Thanks for sharing. Have wonderful holidays.

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kathyhg | @kathyhg | Nov 19, 2020
In reply to @poodledoc "Kathy, I have that same wedge between my mattress and box springs tapering from 5" to..." + (show)
@poodledoc

Kathy, I have that same wedge between my mattress and box springs tapering from 5" to 1", it works fine for me. The wedges that only go to your waist can potentially make things worse by putting a kink in your GI tract, not to mention possibly being hard on your back. I also try not to eat anything 2-3 hrs before bedtime.

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Poodledoc, I found the same thing with a wedge when I tried one and, actually, it ended up in the floor most nights. I find that it also makes a difference what I eat and drink (as well as the volume) even 2-3 hours before I go to bed.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Nov 19, 2020
In reply to @irene5 "@macjane Vitamin D is a very good help for depression. I am sure the time change..." + (show)
@irene5

@macjane Vitamin D is a very good help for depression. I am sure the time change is a catalyst for a depressive mood. Plus, the holidays coming with no real end in sight for Covid can complicate one’s mental health. irene5

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Thanks Irene! Your vitamin D comment made me start taking my vitamins again.

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ginak | @ginak | Nov 19, 2020
In reply to @poodledoc "Kathy, I have that same wedge between my mattress and box springs tapering from 5" to..." + (show)
@poodledoc

Kathy, I have that same wedge between my mattress and box springs tapering from 5" to 1", it works fine for me. The wedges that only go to your waist can potentially make things worse by putting a kink in your GI tract, not to mention possibly being hard on your back. I also try not to eat anything 2-3 hrs before bedtime.

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I agree. I had the half wedge and it was very uncomfortable! I was beginning to have a constant pain in my hip from sleepy on my side. The full I e is so comfortable I wonder if it’s actually working.

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1 reply
onamission | @onamission | Nov 22, 2020
In reply to @migizii "In reply to gej53.....May I ask how much you pay for the solution on Amazon as..." + (show)
@migizii

In reply to gej53.....May I ask how much you pay for the solution on Amazon as Pt. D doesn’t cover this and so far, I haven’t had any luck with getting it covered. Your situation sounds so much like mine....do you have MAC? I initially had some very strange bacteria that my pulmonologist did not treat and no other “bugs” have shown up, although he rarely has me do a sputum test as my bronchiectasis is not progressing very much on yearly CAT scans.....my energy levels fluctuate and my weight isn’t that easy to hold on to (many people feel jealous, but not when one wants some weight). Otherwise, I’ve been pretty good king health wise. Twice daily nebulizing must really be key! This is a valuable site. Stay safe and may you have a nice day😊

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migizii, please read through each of these links to see if K2MK4 is a stone unturned that may offer relief for your bronchiectasis. Notice at the end of the westonprice link the stress is on food sources mentioned not supplements. That is where your money is best spent.
https://www.westonaprice.org/health-topics/in-defense-of-vitamin-k2-mk-4-dr-prices-activator-x/
https://www.sciencedirect.com/science/article/pii/S0306987716309884

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1 reply
woot | @woot | Nov 23, 2020
In reply to @ginak "I agree. I had the half wedge and it was very uncomfortable! I was beginning to..." + (show)
@ginak

I agree. I had the half wedge and it was very uncomfortable! I was beginning to have a constant pain in my hip from sleepy on my side. The full I e is so comfortable I wonder if it’s actually working.

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About sleeping on wedges: Dr Huitt urged me for years to get an adjustable bed. She didn’t like wedges because, she said, you slide down as you sleep, reducing the benefits. With an adjustable bed, you also raise your knees, keeping you from sliding down. I finally bit the bullet, got rid of the wedge and, wow. So much better. The next time I saw Dr Huitt, I told her I finally listened to her advice.

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1 reply
poodledoc | @poodledoc | Nov 23, 2020
In reply to @onamission "migizii, please read through each of these links to see if K2MK4 is a stone unturned..." + (show)
@onamission

migizii, please read through each of these links to see if K2MK4 is a stone unturned that may offer relief for your bronchiectasis. Notice at the end of the westonprice link the stress is on food sources mentioned not supplements. That is where your money is best spent.
https://www.westonaprice.org/health-topics/in-defense-of-vitamin-k2-mk-4-dr-prices-activator-x/
https://www.sciencedirect.com/science/article/pii/S0306987716309884

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I find the conclusions of the Science Direct article very compelling. I am already a taking Vitamin K2-MK4 supplement.

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kathyhg | @kathyhg | Nov 23, 2020

I take 81 mg of ASA every day and read that K2 can affect coagulation. I thought I’d ask the hematologist when I see him in December but wonder if anyone has any experience with this?
Thanks in advance.

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ellenn | @ellenn | Nov 23, 2020

K IS a blood thinner. When I finally stopped taking it, the phlebotomist no longer blew my veins.

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