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Mentor

Mayo Pain Rehab Program: Signing off and my comeback afterwards

Posted by Rachel, Volunteer Mentor @rwinney, Oct 5, 2020

Hello to all my friends on Connect. Today I began the pain rehabilitation program. It was advised that I sign off for now and work on myself exclusively. My best wishes to each and every one of you while I'm away. It is my hope that once I have completed the program and return, I am able to share positive experiences to help all of you in some way, shape or form.
Rachel

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Hank | @jesfactsmon | Oct 6, 2020

@rwinney
Rachel, I think that you not being on Connect is the best thing for you. You need to focus on you now, that is the point after all. I know we are giving up a lot to let you go, but are hoping this is a truly helpful 3 weeks for you. I wish you the very best experience possible and can't wait to hear the details of all that you take away from the Mayo pain program. Best to you, good luck, and we'll be here for you when you return. Your friend always, Hank

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lorirenee1 | @lorirenee1 | Oct 6, 2020

@rwinney Rachel, You do know that where there's a Winney, there's a way!!!! Everyone here just wants the best for you. Learn, conquer, and even eat a few good meals there. Love to you, Lori Renee

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1 reply
sunnyflower | @sunnyflower | Oct 6, 2020

Rachel, wish I would have seen this sooner! I will be upholding you in prayer girl! All the best and more, Sunny

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pfbacon | @pfbacon | Oct 7, 2020

All the best, Rachel ... I always look forward to your posts ... Peggy

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 28, 2020

Hi @rwinney, I hope your 3 weeks went well. I'm very anxious to hear all about the Pain Rehab program and how it worked for you. I can imagine you're not anxious to turn your notifications on yet as you settle back into the new normal. I look forward to hearing from you when you're ready. You've been missed.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Nov 5, 2020

Hello everyone! Thank you so much for your kind words and well wishes. I got home last week and have been reacclimating to my new scheduled life of moderation, modification, flexibility, stability and patience. My Mayo PRC experience was a positive one. It is an awe-inspiring program which is based on Central Sensitization Syndrome.

I finally put the anticipated pieces of my health puzzle together by learning the science behind CSS and the tools to live with it the rest of my life.

For those who aren't familiar, CSS is an upregulation of peripheral input sensory via the spinal cord to the brain. It creates hyper stimulation resulting in symptoms of pain, fatigue, nausea, numbness, dizziness, burning, spasm, tremor and/or spells. Triggers can be light, sound, smell, taste, temperature, movement and touch. Sensory impact can be on skin, gut, muscle, bone, joint, balance, nerve, vascular, smell, vision, taste, hearing. Basically, having CSS means it takes less to hurt, more things cause hurt, hurt lasts longer and fewer things help the hurt.

I have a lot of work to do to in order to remain stable which includes an in home physical therapy plan of excercises, morning stretches and therapeutic cardio. I will continue to work on my emotional and behavioral stability as well. While at Mayo, I eliminated chemicals as in pain medications, most supplements and will no longer be receiving injections or infusions. These are all major parts of the program that I will be all in on for the rest of my life as to calm CSS.

I want to thank all of you for being such a supportive, encouraging, and caring group. I feel fortunate to have met you. As it is not in my best interest to participate on Connect, I am saying goodbye. I may check in from time to time and say hello. Please take good care everyone. Stay positive, stay strong. 😊 My best to you always. XOXOXOXOXOXO

Sincerely,
Rachel

REPLY
7 replies
Mentor
John, Volunteer Mentor | @johnbishop | Nov 5, 2020
In reply to @rwinney "Hello everyone! Thank you so much for your kind words and well wishes. I got home..." + (show)
@rwinney

Hello everyone! Thank you so much for your kind words and well wishes. I got home last week and have been reacclimating to my new scheduled life of moderation, modification, flexibility, stability and patience. My Mayo PRC experience was a positive one. It is an awe-inspiring program which is based on Central Sensitization Syndrome.

I finally put the anticipated pieces of my health puzzle together by learning the science behind CSS and the tools to live with it the rest of my life.

For those who aren't familiar, CSS is an upregulation of peripheral input sensory via the spinal cord to the brain. It creates hyper stimulation resulting in symptoms of pain, fatigue, nausea, numbness, dizziness, burning, spasm, tremor and/or spells. Triggers can be light, sound, smell, taste, temperature, movement and touch. Sensory impact can be on skin, gut, muscle, bone, joint, balance, nerve, vascular, smell, vision, taste, hearing. Basically, having CSS means it takes less to hurt, more things cause hurt, hurt lasts longer and fewer things help the hurt.

I have a lot of work to do to in order to remain stable which includes an in home physical therapy plan of excercises, morning stretches and therapeutic cardio. I will continue to work on my emotional and behavioral stability as well. While at Mayo, I eliminated chemicals as in pain medications, most supplements and will no longer be receiving injections or infusions. These are all major parts of the program that I will be all in on for the rest of my life as to calm CSS.

I want to thank all of you for being such a supportive, encouraging, and caring group. I feel fortunate to have met you. As it is not in my best interest to participate on Connect, I am saying goodbye. I may check in from time to time and say hello. Please take good care everyone. Stay positive, stay strong. 😊 My best to you always. XOXOXOXOXOXO

Sincerely,
Rachel

Jump to this post

Rachel @rwinney thank you for the update. I am beyond words happy for you. Your experience and sharing here on Connect is extremely helpful for others struggling with CSS.
Happy Thursday indeed!

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Nov 5, 2020
In reply to @rwinney "Hello everyone! Thank you so much for your kind words and well wishes. I got home..." + (show)
@rwinney

Hello everyone! Thank you so much for your kind words and well wishes. I got home last week and have been reacclimating to my new scheduled life of moderation, modification, flexibility, stability and patience. My Mayo PRC experience was a positive one. It is an awe-inspiring program which is based on Central Sensitization Syndrome.

I finally put the anticipated pieces of my health puzzle together by learning the science behind CSS and the tools to live with it the rest of my life.

For those who aren't familiar, CSS is an upregulation of peripheral input sensory via the spinal cord to the brain. It creates hyper stimulation resulting in symptoms of pain, fatigue, nausea, numbness, dizziness, burning, spasm, tremor and/or spells. Triggers can be light, sound, smell, taste, temperature, movement and touch. Sensory impact can be on skin, gut, muscle, bone, joint, balance, nerve, vascular, smell, vision, taste, hearing. Basically, having CSS means it takes less to hurt, more things cause hurt, hurt lasts longer and fewer things help the hurt.

I have a lot of work to do to in order to remain stable which includes an in home physical therapy plan of excercises, morning stretches and therapeutic cardio. I will continue to work on my emotional and behavioral stability as well. While at Mayo, I eliminated chemicals as in pain medications, most supplements and will no longer be receiving injections or infusions. These are all major parts of the program that I will be all in on for the rest of my life as to calm CSS.

I want to thank all of you for being such a supportive, encouraging, and caring group. I feel fortunate to have met you. As it is not in my best interest to participate on Connect, I am saying goodbye. I may check in from time to time and say hello. Please take good care everyone. Stay positive, stay strong. 😊 My best to you always. XOXOXOXOXOXO

Sincerely,
Rachel

Jump to this post

@rwinney, thanks for checking in and for the detailed update. I'm so happy for you that the program was successful and that you are committed to taking care of yourself. Stay well.

REPLY
1 reply
lorirenee1 | @lorirenee1 | Nov 5, 2020
In reply to @colleenyoung "@rwinney, thanks for checking in and for the detailed update. I'm so happy for you that..." + (show)
@colleenyoung

@rwinney, thanks for checking in and for the detailed update. I'm so happy for you that the program was successful and that you are committed to taking care of yourself. Stay well.

Jump to this post

@rwinney Rachel, I have just adored your being here, but I totally understand why you need to go. If anyone can benefit from what you have learned, it is you, Rachel. Where there is a Winney, there is a way. I am such a softie, and I am crying for loss of you. But you have inspired me with every post you have made here. You have been a leader here on Connect. A true leader. Even in your letter of goodbye, you have taught us something. I am also going to be using Neuro Plasticity and Central Sensitization techniques, for there is nothing left. I may be enrolling in Jonathan Kuttner's pain class, to make my life more livable. Last nite, I sang inside my head for 3 20 minute sessions, and my pain drifted away. I think the brain can be tricked into serving us better. If you are at all inspired, at least let us know of your progress sometimes. If you don't, I understand that to. Thank you Rachel, and I will always remember you. LoriRenee1

REPLY
helennicola | @helennicola | Nov 5, 2020
In reply to @rwinney "Hello everyone! Thank you so much for your kind words and well wishes. I got home..." + (show)
@rwinney

Hello everyone! Thank you so much for your kind words and well wishes. I got home last week and have been reacclimating to my new scheduled life of moderation, modification, flexibility, stability and patience. My Mayo PRC experience was a positive one. It is an awe-inspiring program which is based on Central Sensitization Syndrome.

I finally put the anticipated pieces of my health puzzle together by learning the science behind CSS and the tools to live with it the rest of my life.

For those who aren't familiar, CSS is an upregulation of peripheral input sensory via the spinal cord to the brain. It creates hyper stimulation resulting in symptoms of pain, fatigue, nausea, numbness, dizziness, burning, spasm, tremor and/or spells. Triggers can be light, sound, smell, taste, temperature, movement and touch. Sensory impact can be on skin, gut, muscle, bone, joint, balance, nerve, vascular, smell, vision, taste, hearing. Basically, having CSS means it takes less to hurt, more things cause hurt, hurt lasts longer and fewer things help the hurt.

I have a lot of work to do to in order to remain stable which includes an in home physical therapy plan of excercises, morning stretches and therapeutic cardio. I will continue to work on my emotional and behavioral stability as well. While at Mayo, I eliminated chemicals as in pain medications, most supplements and will no longer be receiving injections or infusions. These are all major parts of the program that I will be all in on for the rest of my life as to calm CSS.

I want to thank all of you for being such a supportive, encouraging, and caring group. I feel fortunate to have met you. As it is not in my best interest to participate on Connect, I am saying goodbye. I may check in from time to time and say hello. Please take good care everyone. Stay positive, stay strong. 😊 My best to you always. XOXOXOXOXOXO

Sincerely,
Rachel

Jump to this post

Hi Rachel, that is great news! I am sure you will be successful going forward with such a wonderful positive attitude. I am amazed that you are able to discontinue pain drugs and supplements; how have you been handling the pain and why no supplements? Best to you and we will miss hearing from you. Helen

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