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← Return to Mayo Pain Rehab Program: Signing off and my comeback afterwards
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Mayo Pain Rehab Program: Signing off and my comeback afterwards
Chronic Pain | Last Active: Jan 10, 2022 | Replies (63)Comment receiving replies
Hello everyone! Thank you so much for your kind words and well wishes. I got home last week and have been reacclimating to my new scheduled life of moderation, modification, flexibility, stability and patience. My Mayo PRC experience was a positive one. It is an awe-inspiring program which is based on Central Sensitization Syndrome.
I finally put the anticipated pieces of my health puzzle together by learning the science behind CSS and the tools to live with it the rest of my life.
For those who aren't familiar, CSS is an upregulation of peripheral input sensory via the spinal cord to the brain. It creates hyper stimulation resulting in symptoms of pain, fatigue, nausea, numbness, dizziness, burning, spasm, tremor and/or spells. Triggers can be light, sound, smell, taste, temperature, movement and touch. Sensory impact can be on skin, gut, muscle, bone, joint, balance, nerve, vascular, smell, vision, taste, hearing. Basically, having CSS means it takes less to hurt, more things cause hurt, hurt lasts longer and fewer things help the hurt.
I have a lot of work to do to in order to remain stable which includes an in home physical therapy plan of excercises, morning stretches and therapeutic cardio. I will continue to work on my emotional and behavioral stability as well. While at Mayo, I eliminated chemicals as in pain medications, most supplements and will no longer be receiving injections or infusions. These are all major parts of the program that I will be all in on for the rest of my life as to calm CSS.
I want to thank all of you for being such a supportive, encouraging, and caring group. I feel fortunate to have met you. As it is not in my best interest to participate on Connect, I am saying goodbye. I may check in from time to time and say hello. Please take good care everyone. Stay positive, stay strong. 😊 My best to you always. XOXOXOXOXOXO
Sincerely,
Rachel
Replies to "Hello everyone! Thank you so much for your kind words and well wishes. I got home..."
@rwinney, thanks for checking in and for the detailed update. I'm so happy for you that the program was successful and that you are committed to taking care of yourself. Stay well.
Hi Rachel, that is great news! I am sure you will be successful going forward with such a wonderful positive attitude. I am amazed that you are able to discontinue pain drugs and supplements; how have you been handling the pain and why no supplements? Best to you and we will miss hearing from you. Helen
@rwinney There had to be a door that opened. There had to be evidence of an impressive opportunity to embrace and incorporate your discoveries into a time of self-compassion and care. Your consistent, positive contributions to Connect, your kind, and nonjudgemental embrace of members, and your ability to pick up the pieces and start over again when necessary are standout evidence of the quality of your character.
I have appreciated being your protege for a year or more. I am honored to have been the recipient of your trust and have treasured your genuine feedback. Just remember...you do hold the key, you are worth every moment of your success, and you deserve to laugh and play as you enjoy a life with new potential and a peaceful, quiet body.
May you have happiness and the causes of happiness.
Chris
@rwinney I'm so happy for your post, Rachel. You have helped so many here on Connect and I'm glad to hear that your experience at Mayo has helped you now!
Wishing you well and thanks again for all of the great support and information you provided here on Connect. It was great to have you with us!
Hi Rachel, it is so good to hear from you!!! I'm glad your experience at Mayo was beneficial and wish you all the best as you continue the hard work to improve your symptoms!
I would love to hear from you about your progress and how you are doing every now and then. I completely understand why you feel it's in your best interest to step away from the blog/s and only check in from time to time. I get so far behind on the emails/posts/replies that I had 109 emails in one group and 40-50 in another!! I stopped liking most of the posts as I just don't feel good enough to do everything I want to.
It's has been so good to know you here and I will continue to uphold you in prayer in every way that you may experience the comfort and peace of God through Christ which surpasses human understanding (Philippians 4:7). And let's not forget about relief! And victory!
Wamest of all wishes, in Christ's unfathomable love, Sunnyflower
Good day, did the CSS is an upregulation of peripheral input sensory via the spinal cord to the brain, still working for your Peripheral neuropathy? Is it worth and beneficial to contact Mayo? Who was you physician here at Scottsdale/Phoenix?
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Rachel @rwinney thank you for the update. I am beyond words happy for you. Your experience and sharing here on Connect is extremely helpful for others struggling with CSS.
Happy Thursday indeed!