@hotfooted Hi, Sadly, neuropathy can spread. I would suggest getting a current EMG/NCV conduction test to see what is going on with you. So sad, and I am so sorry. Lori Renee
that's why it is called peripheral neuropathy -- it affects first the nerves that go the furthest from your spine,where the nerves are the longest === i.e. feet and legs, hands and arms
@hotfooted
Yes, it can progress and is considered a progressive disease for many. Did it first start in your feet and legs and now going to hands/arms? That is often how it goes as the nerves to the legs are the longest and to the arms the next longest. I am sorry to hear that this is happening to you. When did your neuropathy first start and what caused it if you know? Hank
I have Neuropathy in my ankles, feet & legs & my dr. wants me to try out the HF10 the Spinal Cord Stimulator. Has any one tried this or know anything about it. I am having doubts & I need more research on it. Any help would be appreciated.
John, Volunteer Mentor | @johnbishop | Oct 4, 2020
Hello @hotfooted, I think you posted awhile back about having diabetes. How's are you doing with the diabetes? I'm wondering if the diabetes may be contributing to your peripheral neuropathy. If you want to dig into all of the science behind neuropathy, Matthew B. Jensen a neurologist at the University of Wisconsin in Madison has a great series of education videos here: https://www.youtube.com/c/MatthewBJensen/videos
I think I remember you mentioned having burning feet/pain with your neuropathy and it's also in your hands. I think it normally starts in the toes and progresses up into the legs and at some point usually affects the hands. So, it sounds like you have a normal progression of peripheral neuropathy. You may be interested in following this discussion if you do have diabetes - Diabetic Neuropathy progressing?: https://connect.mayoclinic.org/discussion/diabetic-neuropathy-progressing/
Have you been diagnosed with peripheral neuropathy? What tests did you have?
I have Neuropathy in my ankles, feet & legs & my dr. wants me to try out the HF10 the Spinal Cord Stimulator. Has any one tried this or know anything about it. I am having doubts & I need more research on it. Any help would be appreciated.
I have Neuropathy in my ankles, feet & legs & my dr. wants me to try out the HF10 the Spinal Cord Stimulator. Has any one tried this or know anything about it. I am having doubts & I need more research on it. Any help would be appreciated.
I had a Burst DR spinal cord stimulator implant in June of 2017. Year 1 was wonderful! Year 2 it needed adjustments every 3 months. Year 3 it became less and less effective, down now to not doing anything for the pain. I'm considering a dorsal root ganglion stimulator implant, but I'm far from sure about it. @lorirenee had one a few months ago and the results have been disappointing. But, you may be one of the fortunate ones who are helped long term..
I have Neuropathy in my ankles, feet & legs & my dr. wants me to try out the HF10 the Spinal Cord Stimulator. Has any one tried this or know anything about it. I am having doubts & I need more research on it. Any help would be appreciated.
@tigreyes2004 I just got the DRG stimulator implanted in me about 3 months ago, and it is barely working at all. I would suggest to you that if you do the trial for the HF10, that you do the trial for the full 10 days, and that you should have mostly successful days during it. I had a 10 day trial, and pain lowered by about 50% only on days 7, 8, 9, and on the 10th day, it was removed in the morning. Also know that sometimes, there are successful trials, and still, it does not work. Leads can migrate, and the surgery itself is surgery! It is painful, and healing takes months. Many, many people do well with the HF10. Just know that there is risk, and no guarantee. My best to you. I have had electricity to the leads in my back several times, and it just does not help. My pain doc still thinks I should not give up. I go for another adjustment this Tuesday, but I am no longer hopeful. Also, there are stimulator blogs on the internet. Find these blogs, and read about real people, not the advertisements for the HF10. Advertisements try to sell you. Read real people, real situations. Lori Renee
@tigreyes2004 I just got the DRG stimulator implanted in me about 3 months ago, and it is barely working at all. I would suggest to you that if you do the trial for the HF10, that you do the trial for the full 10 days, and that you should have mostly successful days during it. I had a 10 day trial, and pain lowered by about 50% only on days 7, 8, 9, and on the 10th day, it was removed in the morning. Also know that sometimes, there are successful trials, and still, it does not work. Leads can migrate, and the surgery itself is surgery! It is painful, and healing takes months. Many, many people do well with the HF10. Just know that there is risk, and no guarantee. My best to you. I have had electricity to the leads in my back several times, and it just does not help. My pain doc still thinks I should not give up. I go for another adjustment this Tuesday, but I am no longer hopeful. Also, there are stimulator blogs on the internet. Find these blogs, and read about real people, not the advertisements for the HF10. Advertisements try to sell you. Read real people, real situations. Lori Renee
@lorirenee1 I'm sorry your stimulator implant hadn't helped you I'm seeing my neurosurgeon tomorrow as I've had a rough week so I'm hoping for a change of meds or something he can do for me
@tigreyes2004 I just got the DRG stimulator implanted in me about 3 months ago, and it is barely working at all. I would suggest to you that if you do the trial for the HF10, that you do the trial for the full 10 days, and that you should have mostly successful days during it. I had a 10 day trial, and pain lowered by about 50% only on days 7, 8, 9, and on the 10th day, it was removed in the morning. Also know that sometimes, there are successful trials, and still, it does not work. Leads can migrate, and the surgery itself is surgery! It is painful, and healing takes months. Many, many people do well with the HF10. Just know that there is risk, and no guarantee. My best to you. I have had electricity to the leads in my back several times, and it just does not help. My pain doc still thinks I should not give up. I go for another adjustment this Tuesday, but I am no longer hopeful. Also, there are stimulator blogs on the internet. Find these blogs, and read about real people, not the advertisements for the HF10. Advertisements try to sell you. Read real people, real situations. Lori Renee
@lorirenee1@jimhd
Renee @faithwalker007 mentioned yesterday that she has a DRG stimulator implant as well and I asked her how it was going for her. Hope she replies. Hank
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@hotfooted Hi, Sadly, neuropathy can spread. I would suggest getting a current EMG/NCV conduction test to see what is going on with you. So sad, and I am so sorry. Lori Renee
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2 Reactionsthat's why it is called peripheral neuropathy -- it affects first the nerves that go the furthest from your spine,where the nerves are the longest === i.e. feet and legs, hands and arms
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3 Reactions@hotfooted
Yes, it can progress and is considered a progressive disease for many. Did it first start in your feet and legs and now going to hands/arms? That is often how it goes as the nerves to the legs are the longest and to the arms the next longest. I am sorry to hear that this is happening to you. When did your neuropathy first start and what caused it if you know? Hank
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Helpful -
Hug
2 ReactionsI have Neuropathy in my ankles, feet & legs & my dr. wants me to try out the HF10 the Spinal Cord Stimulator. Has any one tried this or know anything about it. I am having doubts & I need more research on it. Any help would be appreciated.
Hello @hotfooted, I think you posted awhile back about having diabetes. How's are you doing with the diabetes? I'm wondering if the diabetes may be contributing to your peripheral neuropathy. If you want to dig into all of the science behind neuropathy, Matthew B. Jensen a neurologist at the University of Wisconsin in Madison has a great series of education videos here: https://www.youtube.com/c/MatthewBJensen/videos
I think I remember you mentioned having burning feet/pain with your neuropathy and it's also in your hands. I think it normally starts in the toes and progresses up into the legs and at some point usually affects the hands. So, it sounds like you have a normal progression of peripheral neuropathy. You may be interested in following this discussion if you do have diabetes - Diabetic Neuropathy progressing?: https://connect.mayoclinic.org/discussion/diabetic-neuropathy-progressing/
Have you been diagnosed with peripheral neuropathy? What tests did you have?
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2 Reactions@tigreyes2004, There are a couple of discussion on the stimulators that you might want to read through to see if it helps.
- Has anyone one tried the HF10 Spinal Cord Stimulation Device?: https://connect.mayoclinic.org/discussion/hf-10-spinal-cord-stimulation-device-relieves-back-and-leg-pain/
- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/
@tigreyes2004
I had a Burst DR spinal cord stimulator implant in June of 2017. Year 1 was wonderful! Year 2 it needed adjustments every 3 months. Year 3 it became less and less effective, down now to not doing anything for the pain. I'm considering a dorsal root ganglion stimulator implant, but I'm far from sure about it. @lorirenee had one a few months ago and the results have been disappointing. But, you may be one of the fortunate ones who are helped long term..
Best wishes.
Jim
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1 Reaction@tigreyes2004 I just got the DRG stimulator implanted in me about 3 months ago, and it is barely working at all. I would suggest to you that if you do the trial for the HF10, that you do the trial for the full 10 days, and that you should have mostly successful days during it. I had a 10 day trial, and pain lowered by about 50% only on days 7, 8, 9, and on the 10th day, it was removed in the morning. Also know that sometimes, there are successful trials, and still, it does not work. Leads can migrate, and the surgery itself is surgery! It is painful, and healing takes months. Many, many people do well with the HF10. Just know that there is risk, and no guarantee. My best to you. I have had electricity to the leads in my back several times, and it just does not help. My pain doc still thinks I should not give up. I go for another adjustment this Tuesday, but I am no longer hopeful. Also, there are stimulator blogs on the internet. Find these blogs, and read about real people, not the advertisements for the HF10. Advertisements try to sell you. Read real people, real situations. Lori Renee
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Helpful -
Hug
1 Reaction@lorirenee1 I'm sorry your stimulator implant hadn't helped you I'm seeing my neurosurgeon tomorrow as I've had a rough week so I'm hoping for a change of meds or something he can do for me
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1 Reaction@lorirenee1 @jimhd
Renee @faithwalker007 mentioned yesterday that she has a DRG stimulator implant as well and I asked her how it was going for her. Hope she replies. Hank