Ulcerative Colitis questions: Confused and frustrated

Posted by psdoolittle @psdoolittle, Jan 27, 2020

I have been navigating a UC diagnosis for about the last 6 months. Previously the stool bleeding was diagnosed as hemmeroidal, but things continued to progress until a colonoscopy revealed serious inflammation in the colon. After a grade 3 diagnosis, the doctors pushed for humira. I tried a very strict, anti-inflammatory diet first, and it helped a lot. Still a little blood in the stool tho. So tried mesalamine both oral and the suppository. I thought things were improving using b, as the color I saw in the stool was purple rather than red, but doctors said it was still blood and pushed again for humira. I took their advice and am now approaching the 7th injection. I have more bleeding now than ever and I have abdominal pain and urgency. I am definitely in the middle of one of my worst flareups. Anyone out there have a similar story and advice? I'm feeling confused and frustrated.

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bosco17 | @bosco17 | Sep 19, 2020

In reply to @mariajean03 "I'm constipated every day on a low residue diet for moderate to severe ulcerative colitis. What..." + (show)

Exercise, Plenty of water , probiotics and prebiotics. Dont use prunes-- too much sugar and fiber no good for U.C.

mariajean03 | @mariajean03 | Sep 19, 2020

In reply to @mariajean03 "I'm constipated every day on a low residue diet for moderate to severe ulcerative colitis. What..." + (show)

Thanks for all your help guys. But I don't know what persistant starch is and where to get it. All my Dr. suggests is Senecot as needed. Have not tried it yet. Maria.

marilyncarkner | @marilyncarkner | Sep 20, 2020

In reply to @mariajean03 "I love vegetables but can't digest them properly. Stool softeners are not strong enough." + (show)

I hear you ..hard to stay healthy when fruits and veg cause stomach issues

bosco17 | @bosco17 | Sep 20, 2020

In reply to @mariajean03 "Thanks for all your help guys. But I don't know what persistant starch is and where..." + (show)

RESISTANT STARCH —-Google it___Get it on Amazon

bosco17 | @bosco17 | Sep 20, 2020

In reply to @marilyncarkner "I hear you ..hard to stay healthy when fruits and veg cause stomach issues" + (show)

Diet-- AM-Oatmeal W/ Sugarless applesause--,Lunch- ALOT of greek yogurt w/ resistant starch, PM-_salmon or chicken ,butternut squash,,asparagus. Snacks-- Greek yogurt with soft canned peaches or applesause or blueberries

bosco17 | @bosco17 | Sep 20, 2020

In reply to @marilyncarkner "I hear you ..hard to stay healthy when fruits and veg cause stomach issues" + (show)

Exercise 30-45 mins a day and drink 100 ozs of water a day

dval | @dval | Sep 20, 2020

In reply to @bosco17 "Exercise 30-45 mins a day and drink 100 ozs of water a day" + (show)

Yes, absolutely - exercise and lots of water all day!! I walk 5 miles a day and drink at least 64 ounces of water a day. 👍

bosco17 | @bosco17 | Sep 20, 2020

In reply to @dval "Yes, absolutely - exercise and lots of water all day!! I walk 5 miles a day..." + (show)

Need more water 80-100 ozs /day Look into RESISTANT STARCH Its amazing

showdyd | @showdyd | Sep 20, 2020

In reply to @mariajean03 "I'm constipated every day on a low residue diet for moderate to severe ulcerative colitis. What..." + (show)

I’m looking at your answers because I have the same problem

suewilliams64 | @suewilliams64 | Sep 20, 2020

In reply to @mariajean03 "I'm constipated every day on a low residue diet for moderate to severe ulcerative colitis. What..." + (show)

I just watched Anthony William do several videos
About this. His recent book ‘Cleanse to heal’ has all the protocols. I’m doing his cleanse for EBV and mono and it’s been really helping. I hope it helps