Neuropathy Medications

Posted by sunnyflower @sunnyflower, Aug 28, 2020

Hello, read this artical from the FDA dated January 30th, 2020, about dangers of Gabapentin, Lyrica and other drugs. I thought it worthy of our attention : https://www.fda.gov/drugs/drug-safety-and-availability/fda-warns-about-serious-breathing-problems-seizure-and-nerve-pain-medicines-gabapentin-neurontin
Warmest regards, Sunnyflower 🙏

Interested in more discussions like this? Go to the Neuropathy Support Group.

@jesfactsmon

@phoenix0509 Thank-you for YOUR kind words David. I'd just like to say that I would love it if you could post your full story in the member journey stories discussion. You did write a post in January that is very interesting, but a full blown description of what you have been through since it all started would be most welcome, not just to me but to everybody.

Waking up in the morning to see what anyone has posted since the day before has become a real treat for me. I wish better days for you and all pain sufferers here. You guys kill me (in the best way imaginable). Hank

Jump to this post

@phoenix0509, should you wish to add your neuropathy story, here's where to post it

- Member Neuropathy Journey Stories: What's Yours? https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

REPLY
@avmcbellar

Hi Barry @user_che214927, I believe as John said. There are 2 methods for treating the pain, neuroplasticity and medications. Most people would prefer the latter because of quicker results. Medications can block the receptors to “fool” the brain where as in neuroplasticity the brain is creating new pathways through repetitive action which can take many months. The brain or nervous system is powerful when it comes to adapting and learning new things, e.g. look at evolution and mutations throughout the years.
I also take nil medications and am practicing neuroplasticity by performing daily eye exercises to align my eyes in hopes of someday eliminating my diplopia. I have the time and figured why not, I have nothing to lose. If need be I will schedule strabismus surgery in 15 months, the time wait for the medical insurance coverage to begin. After being consistent for 3 months I have noticed a significant improvement. I do the eye exercises numerous times throughout the day, as much as I can tolerate. I may also start a conscious effort in performing actions to improve my walking......as the saying goes, “practice makes perfect”. To me this is a better method than taking risks with medications and dealing with its side effects. It does take discipline and a lot of hard work but it pays off in the long run. I believed from the time I was a young adult, no matter what life threw at you, to always do your best in trying different ways to resolve issues. One should never second guess their decisions by saying.....”I should have......”.
That is why I research before coming to a conclusion. Once I make a decision I stay with it. This is a lot healthier way to put things behind and move on. I only look back as a learning experience and never have I regretted a decision. Barry, I commend you on your efforts! Keep on practicing. You are never too old to learn. You look great and I am sure even better come January your summertime. Stay healthy. I see Australia is mandating tough curfews to control its covid cases. A job well done during flu season.

Jump to this post

Congratulations. I totally agree with your thinking, and wish you a great out outcome. Just an interesting point on improving the walk motion. I can walk around the house, but, as my left foot is most affected, but improving.However I then considered if I continued to walk in an un natural gait , the brain would read that into my body map. I decided to walk with two stick, with clamps on forearm. This allows me to walk slowly with full use heel to toes action.As a result the contact and use of left foot is improving quickly. I am now walking outdoors with the sticks, with a good motion. I walked 300 yards yesterday, and will increase distance slowly . Best wishes, and go for it!

REPLY
@bustrbrwn22

Can I ask what nerves you and your wife had issues with? Mine is S1

Jump to this post

My wife doesn't remember which vertebra, but mine is L3L4.

REPLY

I don't know if I have done a profile or not ... I'll check in October ... I won't have time until then. We're in escrow on the house we're selling and it's chaos with everyone trying their best to work from home but no one in any of the companies knowing what anyone else is doing and mistakes are happening every day. We just went through some scary days while closing on the house we bought. Peggy

REPLY

@pfbacon Are you moving back to CA? Hope your alright 👍

REPLY
@pfbacon

I don't know if I have done a profile or not ... I'll check in October ... I won't have time until then. We're in escrow on the house we're selling and it's chaos with everyone trying their best to work from home but no one in any of the companies knowing what anyone else is doing and mistakes are happening every day. We just went through some scary days while closing on the house we bought. Peggy

Jump to this post

Peggy, mine is pretty lame because I'm such a private person or at least I was until becoming active in this blog LOL! Maybe I will go back a put more into it when I have time. No worries everyone here seems to understand time pressures. Be well, Sunny flower

REPLY
@lioness

@pfbacon Are you moving back to CA? Hope your alright 👍

Jump to this post

Bethany Beach, Delaware. I love it here. I run on the beach every day, bike most anywhere, the weather is mild compared to other places I've been, and the people are nice. I love California but it has changed so much ... I'm sure my old neighborhoods (Palos Verdes in LA, The Presidio in SF) are still safe but for how long? The cities are jungles, the monkeys have ravaged all the lower-hanging fruit and torn off the branches, they are hungry constantly, their numbers are increasing exponentially, they will get to the tops of the trees. Bethany Beach is on the Delmarva Peninsula, it's sparsely populated and safer than many other parts of the country. We're close to our daughter in Washington DC, taxes are low, new medical centers are opening up to fill the doctor shortage ... Our house near DC is in escrow, this month is busy for me as I'm there now making tough decisions about what the movers will take and what the "I'll take anything" junk man will take ... antiques, china, silver, art, musical equipment, have almost no value now. I can't take them, so I just have to let them go with the junk man. We aren't going to have dinner parties any more, we won't attend charity balls, our gracious life is over. It hurts but I will mend. I have the beach. I can remind myself that I am trading it all for the Atlantic Ocean, the salty/windy air, birds, seals, foxes, turtles, dolphins, whales ... in that perspective, it's worth it. Peggy

REPLY

PS ... Thanks for asking. Where do you live? We are digressing a tad from the topic - I hope no one minds. Peggy

REPLY
@pfbacon

PS ... Thanks for asking. Where do you live? We are digressing a tad from the topic - I hope no one minds. Peggy

Jump to this post

@pfbacon. I live in Long Beach did one year in Van Nuts then went back to PA spent a lot of summers in Bethany rehoboth and Ocean City Md loved it wish I could move back but not possible now you brought back good memories Enjoy your new place

REPLY
@pfbacon

Bethany Beach, Delaware. I love it here. I run on the beach every day, bike most anywhere, the weather is mild compared to other places I've been, and the people are nice. I love California but it has changed so much ... I'm sure my old neighborhoods (Palos Verdes in LA, The Presidio in SF) are still safe but for how long? The cities are jungles, the monkeys have ravaged all the lower-hanging fruit and torn off the branches, they are hungry constantly, their numbers are increasing exponentially, they will get to the tops of the trees. Bethany Beach is on the Delmarva Peninsula, it's sparsely populated and safer than many other parts of the country. We're close to our daughter in Washington DC, taxes are low, new medical centers are opening up to fill the doctor shortage ... Our house near DC is in escrow, this month is busy for me as I'm there now making tough decisions about what the movers will take and what the "I'll take anything" junk man will take ... antiques, china, silver, art, musical equipment, have almost no value now. I can't take them, so I just have to let them go with the junk man. We aren't going to have dinner parties any more, we won't attend charity balls, our gracious life is over. It hurts but I will mend. I have the beach. I can remind myself that I am trading it all for the Atlantic Ocean, the salty/windy air, birds, seals, foxes, turtles, dolphins, whales ... in that perspective, it's worth it. Peggy

Jump to this post

@pfbacon @lioness
You guys are making me miss my old childhood haunts in Delaware. Stop it! 😊 I used to love going to Bethany Beach in the 50's & 60's. Is there anything better than the feeling of a safe and warm and family-loving memory from childhood? Peggy, my hat is off to you for doing something wonderful for yourself and moving to such a great place. My last visit was in 2003 and it had changed a bit bt not TOO much. Good luck on completing your move. Hank

REPLY
Please sign in or register to post a reply.