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Have MAC A —-Maybe on Arikayce??

Posted by judyhodgern @judyhodgern, Aug 20, 2020

I apologize I’m kind of a rambler but here goes
Also—-wondered if anybody else had this occurrence———My Situation——-FYI—(I am on Arikayce, ethambutol,Zithromax,Colfazamine) JIt When I have a productive cough and it’s happening fairly often , I have clear sputum with small Pencil eraser size Pink roundish spots .

I’m wondering could the pink dots be the Mac I have? is that characteristic? I’ve had abscesses Abscessus before and I don’t think that it manifests itself like this? Can anyone offer any relation to this? I don’t think it’s blood because I do have s1

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Mentor
Sue, Volunteer Mentor | @sueinmn | Aug 20, 2020

@judyhodgern Judy - I don't think you're seeing MAC, which is microscopic, but I do believe you may be seeing a bit of blood, highly diluted, in your sputum. In your situation, I would probably call my pulmonologist and ask if they want me to catch a bit in a specimin cup and bring it in for a look.
Sue

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1 reply
Tina Sims | @tinaesims | Aug 21, 2020

I also see a spot every now and then. I thought it was my food that I coughed up?

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judyhodgern | @judyhodgern | Aug 22, 2020
In reply to @sueinmn "@judyhodgern Judy - I don't think you're seeing MAC, which is microscopic, but I do believe..." + (show)
@sueinmn

@judyhodgern Judy - I don't think you're seeing MAC, which is microscopic, but I do believe you may be seeing a bit of blood, highly diluted, in your sputum. In your situation, I would probably call my pulmonologist and ask if they want me to catch a bit in a specimin cup and bring it in for a look.
Sue

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Thanks so much Sue I will follow up

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annette18 | @annette18 | 20 hours ago

I have bronchiectasis for many years and abscess for 4 yrs .I was able to do sports with no problem until 2 yrs ago. I am having SOB n use Levalbuterol 1-2x a day. Formoderal n Levoquin gave me muscle pain.
I’m seeing pulmonologist this Thursday. She ordered a full body Pet Scan but I doing a full body Thermography Feb 5th. I am an active 91 yrs old female with good energy most of the time but the SOB concerns me. I did not take the protocol medication { I’ve therapy 3 different meds for 2 yrs.} I’m keeping up my immune system with herbs. Positive thinking, meditation 🧘🏼‍♀️
I’m looking for advice n support.
Thank u. Ann

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