← Return to Nodular sclerosing Hodgkin lymphoma (NSHL): What can I expect?

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@melbishop

Yeah, I haven't stated treatment yet. The first will be Thursday. I have Classic Hodgkin's, Nodular Sclerosis, Stage 3/4. Symptoms were the skin conditions but mostly the needles and pins across my back and legs, with chills on 90 degree days w/ goosebumps. Assuming I had COVID 19 I tested twice and went to the ER waiting for the third which where still 10+ days for results. After being cleared my PA found anti-inflammatory markers through the roof and subsequent blood tests eventually pointed towards lymphoma as confirmed by scans with multiple lymph nodes and clusters.
The Dermatologists could only say it was disease related and recommended continued lotions.
They hope that these symptoms may reduce when I start treatment. I believe neuropathy usually starts in hands and feet where I have no issues.
Simple Advil and Tylenol seem to provide some relief from both the chills and pins, but fingers are crossed for Thursday.
My chemo will be ABVD, and I'll let you guys know how it goes.
I assume I will pretty down afterwards, and maybe after every treatment...
Take Care, and Happy Sunday...

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Replies to "Yeah, I haven't stated treatment yet. The first will be Thursday. I have Classic Hodgkin's, Nodular..."

@melbishop Happy Sunday to you as well. I don’t know where you are, but here in south central PA we are looking at sunshine. Hope that also shines on your Sunday. I will pray for you Thursday, and that you have minimal anxiety as you get treatment #1 under your belt. We all remember that first treatment and appreciate how confidence increases as we realize the benefit from our informed decisions and choices of care. Best wishes for peace going into this week. Your new Connect community looks forward to hearing from and supporting you in any way we can.
Nancy