1. < Neuropathy

anyone feel more burning/numbness when sitting

Posted by notborntoburn @notborntoburn, Jul 27, 2020

Hi I am getting beyond frustrated! Laying down puts my pain at 110% ,sitting in a chair puts the numbness and burning way over my threshold of pain. I can hardly sit at a table to write,eat,carry on a conversation,within minutes I question if my feet and calves actually look as painful as they feel! They look fine yet oh the nerves just go nuts firing in all directions with a bed of hot coals. I have been on every medication to to man,even some unknown! Thanks for your knowledge Marianne

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avmcbellar | @avmcbellar | Sep 7, 2020
In reply to @sunnyflower "Hello. Yes, the Prednisone is responsible for a lot of damage to my body and that's..." + (show)
@sunnyflower

Hello. Yes, the Prednisone is responsible for a lot of damage to my body and that's a gross understatement. Some of my other toxic medications as well. It's quite simply, a quality of life issue that I agonize over daily. I think I may have mentioned that my recent bone density scan showed my already severe osteoporosis is significantly worse. My husband and I talked to my Endocrinologist for and hour and 20 minutes last Thursday about my drug options to improve my risk of a spine, hip, wrist or other fracture. These Bisphosphonates can have severe side-effects and including severe flu-like symptoms, although rare, femur fractures and a femur tumor!!!!!! I don't know what to do! They've been wanting me to take the medication for over 4 years now. I and others are praying for direction. This is generally how my life goes. I know the Lord will be with me and comfort me whatever happens.
Take care and warmest regards, Sunnyflower 😊

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@sunnyflower it is not an easy decision to make. May I suggest talking to the physician who wants to prescribe a medication. Discuss your concerns and if the benefits outweigh the risks. What are the goals you want to achieve? Be prepared to ask questions. Doctors don’t want their time wasted. I believe they will be more cooperative with organized patients. Besides being organized will allow more time for you to ask questions anyways. I would take all the input, think about it before coming to a conclusion. If need be, do more research of your own with the internet and/or by making phone calls. Best of luck!

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1 reply
pfbacon | @pfbacon | Sep 7, 2020
In reply to @sunnyflower "Hi Peggy, yes, everything hurts more and I don't know if it's related but I notice..." + (show)
@sunnyflower

Hi Peggy, yes, everything hurts more and I don't know if it's related but I notice these skin wounds and bruises are taking much longer to heal. I suspect it's from my age, other diseases and medications but do think some of it is the neuropathy. Take care, Sunnyflower

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Yes, Sunnyflower, cuts take longer to heal lately and I don't know whether it's because of age (I'm 69) or neuropathy. Peggy

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1 reply
sunnyflower | @sunnyflower | Sep 8, 2020
In reply to @avmcbellar "@sunnyflower it is not an easy decision to make. May I suggest talking to the physician..." + (show)
@avmcbellar

@sunnyflower it is not an easy decision to make. May I suggest talking to the physician who wants to prescribe a medication. Discuss your concerns and if the benefits outweigh the risks. What are the goals you want to achieve? Be prepared to ask questions. Doctors don’t want their time wasted. I believe they will be more cooperative with organized patients. Besides being organized will allow more time for you to ask questions anyways. I would take all the input, think about it before coming to a conclusion. If need be, do more research of your own with the internet and/or by making phone calls. Best of luck!

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Yes, I agree. I address that talk we already had with my doctor in the post you are replying to.

I worked as a Medical Assistant in patient care for over 20 years. My career goal was to be a Physician Assistant and had extra training outside my job. The providers I worked with knew where I was heading so they were training me along the way. They were great! Then I became too sick to continue pursuing my goal.

I have been a patient with many specialists for over 35 years. I pretty much know the drill and what makes for a happy doctor. That is to keep them on schedule!!

As the saying goes, everything in medicine is a
benefit /risk ratio and often a no-win; quality of life with unwanted consequences. Medicine, part science and part art of practice.

I am grateful for the wonderful care I've received over the years. Not perfect and not all wonderful, but most.

Warm regards, Sunnyflower

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avmcbellar | @avmcbellar | Sep 8, 2020

Hi @sunnyflower, your experience as a Medical Assistant has certainly been a big plus in dealing with your medical issues. I am glad you have had the opportunity for additional learnIng outside your job. It makes it much easier to understand the reason behind medical treatments. When I was asking about your goals, I was referring to your goals for the medical condition. Determining what goal you want to achieve with the medical condition will help you make a decision with the treatment after speaking with your physician. Staying focused on a path to take will make the decision easier for you. Best of luck!

REPLY
1 reply
sunnyflower | @sunnyflower | Sep 8, 2020
In reply to @pfbacon "Yes, Sunnyflower, cuts take longer to heal lately and I don't know whether it's because of..." + (show)
@pfbacon

Yes, Sunnyflower, cuts take longer to heal lately and I don't know whether it's because of age (I'm 69) or neuropathy. Peggy

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Hi Peggy, yup, I think it's a combo of age, meds and health conditions. Warmest regards, Sunny

REPLY
sunnyflower | @sunnyflower | Sep 25, 2020
In reply to @avmcbellar "Hi @sunnyflower, your experience as a Medical Assistant has certainly been a big plus in dealing..." + (show)
@avmcbellar

Hi @sunnyflower, your experience as a Medical Assistant has certainly been a big plus in dealing with your medical issues. I am glad you have had the opportunity for additional learnIng outside your job. It makes it much easier to understand the reason behind medical treatments. When I was asking about your goals, I was referring to your goals for the medical condition. Determining what goal you want to achieve with the medical condition will help you make a decision with the treatment after speaking with your physician. Staying focused on a path to take will make the decision easier for you. Best of luck!

Jump to this post

Hi, I just do the best I can to stay on top of everything. It is almost a full-time job to be your own Advocate but I have had to do that for years. I have fallen through the cracks for example, once I had three low-sodium and nobody told me. And a low cortisol. I wasn't called. That's when we found out my adrenal glands had bit the Dust. Shameful! Thank you so much for your input! Blessings, Sunny flower

REPLY
pigball | @pigball | Nov 3, 2020
In reply to @sunnyflower "Hello. Yes, the Prednisone is responsible for a lot of damage to my body and that's..." + (show)
@sunnyflower

Hello. Yes, the Prednisone is responsible for a lot of damage to my body and that's a gross understatement. Some of my other toxic medications as well. It's quite simply, a quality of life issue that I agonize over daily. I think I may have mentioned that my recent bone density scan showed my already severe osteoporosis is significantly worse. My husband and I talked to my Endocrinologist for and hour and 20 minutes last Thursday about my drug options to improve my risk of a spine, hip, wrist or other fracture. These Bisphosphonates can have severe side-effects and including severe flu-like symptoms, although rare, femur fractures and a femur tumor!!!!!! I don't know what to do! They've been wanting me to take the medication for over 4 years now. I and others are praying for direction. This is generally how my life goes. I know the Lord will be with me and comfort me whatever happens.
Take care and warmest regards, Sunnyflower 😊

Jump to this post

Hi Sunnyflower, I also have osteoporosis after done a calcium test and been recommended to take Saludynam's Calcium gluconate - link at bhbhealth dot com / products / saludynam This calcium is liquid and it doesn't cause kidney stones. Take 1 small cup (the bottle comes with it) before bed time, once a day. A bottle can last 1.5mth

REPLY
1 reply
pigball | @pigball | Nov 3, 2020

Hi notborntoburn, I wonder how is your progress. For others here's my experience. I had tingling effect on both feet and I had rough time getting to sleep but after my bypass, it was all gone. I can sleep like a baby. I thought it was due to the meds. Then now when I try to sit to paint, and when I stand my both feet can ben seen turning black especially the veins. After walking a bit its back to normal. Its the same after I even switched chairs. I now suspect Imdex (Isosorbide mononitrate) is causing this side effect. My feet all the time had numbness and tightness feeling even resting on bed. I'm starting to take TienChi (Panax notoginseng) powder to unblock my arteries/veins of my feet. Today is just 2nd day. It'll take a few days to see the effect. I'll update on this.

You'll really need to watch out what is your food intake. NO cold drinks. Avoid fry food/fats. Do NOT simply exercise on your legs eg bicycling to further injure your nerves.

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onamission | @onamission | Nov 3, 2020
In reply to @jimhd "@maryv449 I have small fiber peripheral polyneuropathy, and my feet very quickly hurt way worse when..." + (show)
@jimhd

@maryv449

I have small fiber peripheral polyneuropathy, and my feet very quickly hurt way worse when I sit or lie down. I haven't found out why that is. Today, in town for my wife's doctor appointment, my feet hurt around 5 when I walked through Costco, but sitting in the car waiting for my wife, they went to 7. I got a blanket and a bag of cushion stuff (to protect things we buy) from the trunk, to rest my feet on. It helped a little, but I have to keep changing my position. When we got home to my recliner, the pain level went up to 8 or 9. Part of the pain is a burning sensation, part is the feeling of being squeezed, some stabbing, and contact pain.

It's kind of strange that they hurt more, sitting or lying, than when walking. Standing still makes them hurt, too.

Do you have a diagnosis of why you have burning pain? Any medication that helps? My doctors - PCP, neurologists and pain specialist - have really worked with me to find a treatment for my sfn, with very little long term success. Some things have reduced the pain, but only for a few months. My spinal cord stimulator is the one thing that has given me significant relief. It's not doing much right now, but spinal stenosis may be interfering. I'll find out if that's true when I have back surgery in September, and to what extent it's interfering. Like you, I've tried every medication the doctors have prescribed.

Did the links John shared give you any helpful information? I hope you can find some answers to the cause and treatment of your pain.

Jim

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Have you researched thiamine for your small fiber peripheral polyneuropathy? Also vitamin D may offer relief for the spinal stenosis along with boron. Both thiamine and vitamin D require sufficient magnesium for activation. A deficiency of active thiamine can be an overlooked cause for burning feet and peripheral neuropathy. As you search on "krispin magnesium" you'll find pain on the list of causes for magnesium. Search on " Is Thiamine Deficiency Destroying Your Digestive Health? Why B1 Is ESSENTIAL For Gut Function". Also research glutathione to reduce inflammation..

https://vitamindwiki.com/Lumbar+spinal+stenosis+pain+strongly+associated+with+low+vitamin+D+%E2%80%93+March+2013
REPLY
sunnyflower | @sunnyflower | Nov 9, 2020
In reply to @pigball "Hi Sunnyflower, I also have osteoporosis after done a calcium test and been recommended to take..." + (show)
@pigball

Hi Sunnyflower, I also have osteoporosis after done a calcium test and been recommended to take Saludynam's Calcium gluconate - link at bhbhealth dot com / products / saludynam This calcium is liquid and it doesn't cause kidney stones. Take 1 small cup (the bottle comes with it) before bed time, once a day. A bottle can last 1.5mth

Jump to this post

Hello pigball. Thx for this info. I will look into it. Hope you feel better. Warmest wishes, Sunnyflower

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