anyone feel more burning/numbness when sitting

@fde11

I have peripheral neuropathy, with severe pain in my feet and ankles, now moving up my legs. My pain is always there, but lately it's been worse when I sit or lie down. Standing still is worse than walking.

Have you figured out exactly where you don't feel the needle? Have you told a doctor about what you're experiencing?

Numbness and pins and needles are classic signs of neuropathy. If you can, I'd recommend that you make an appointment with a neurologist. Is that possible?

Often, neuropathy is associated with diabetes. I'm not diabetic, and doctors don't know what brought on my neuropathy. Some people have it as a side effect of chemotherapy, but there are a lot of unknowns.

If you feel comfortable about talking about what's happening, you can know that this is a safe place to talk. I'll be looking for you.

Jim

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Hi Jim, I 'm having a little trouble understanding who your message is for. Thx so much, Sunny

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@fde11

I have peripheral neuropathy, with severe pain in my feet and ankles, now moving up my legs. My pain is always there, but lately it's been worse when I sit or lie down. Standing still is worse than walking.

Have you figured out exactly where you don't feel the needle? Have you told a doctor about what you're experiencing?

Numbness and pins and needles are classic signs of neuropathy. If you can, I'd recommend that you make an appointment with a neurologist. Is that possible?

Often, neuropathy is associated with diabetes. I'm not diabetic, and doctors don't know what brought on my neuropathy. Some people have it as a side effect of chemotherapy, but there are a lot of unknowns.

If you feel comfortable about talking about what's happening, you can know that this is a safe place to talk. I'll be looking for you.

Jim

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Hello Jim, ty so much for your reply, i am not diabetic, i did talk to my doctor and the answer was it's nothing to worry about,but i am worried, i get these symptoms every day in the last 3 months and because of this covid-19 it is so difficult to see a doctor in person.i get this pinches in the back of my legs and burning in the front of my legs, i am 65 yrs old.

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Hello Jim, ty so much for your reply, i am not diabetic, i did talk to my doctor and the answer was it's nothing to worry about,but i am worried, i get these symptoms every day in the last 3 months and because of this covid-19 it is so difficult to see a doctor in person.i get this pinches in the back of my legs and burning in the front of my legs, i am 65 yrs old.

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Hello @sunnyflower. John has provided the starting point and info for you. I recommend having your most hands on , knowledgable Drs who are very involved in your health be the ones to refer you. My experience being referred by my Drs. was that I had been diagnosed already with things Mayo felt I could be treated for by my local Drs. Possibly I was no great mystery and apparently they felt they could not help. Or were too busy to take me on. Perhaps your multiple diagnosis and unique diseases will draw attention for treatment. You've got nothing to lose! Go for it!!
Many well wishes to you,
Rachel

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Hi @fde11 since I might be one of the few people here who is not sleeping at the moment I will just weigh in here on your message. From your description it does sound like you may be developing the symptoms of peripheral neuropathy in your legs. There are two tests which people who want to have a definitive diagnosis of PN can have done, a nerve conduction test or a skin punch biopsy (google can explain either of these for you) . Both can affirm or rule out sfpn. Here's a brief synopsis of sfpn: https://www.healthline.com/health/small-fiber-neuropathy . If that is what you have, then you may find it gradually getting worse over time or it might stabilize. It could even recede although that is not what happens to most of the people whose experiences I read about. My wife has it in her feet, and has bad burning, occasionally bad itching and/or pins and needles. Thankfully it has not moved up beyond her ankles yet, except once in a while. I recommend you stay in touch with ( i.e. regularly read) the Mayo Connect neuropathy discussions, and you may gain a lot of insight from people actually suffering from it, which makes a great addition to the inputs you will gain from doctors. Among the many people who I have found particularly helpful are @jimhd (who you've met) @johbishop @rwinney @artscaping @lorirenee1 (I could go on there are so many) Wish I could add more than this meagre response, but hopefully you will begin to get answers you need as you move forward speaking with these knowledgeable folks, PN is a journey and not much of a fun one I'm afraid. Best to you, Hank

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@fde11.

I would be skeptical if my doctor said it was nothing to worry about, and I'd be scheduling an appointment with a neurologist for testing. It might not worry your doctor, but he's not the one with the pain. I'm a little irritated about the way he just blew you off.

I've learned it late in life, but I have to be my own advocate. Don't give up on finding a proven diagnosis. Even if it's not good news, knowledge brings strength.

Jim

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Hi @fde11 since I might be one of the few people here who is not sleeping at the moment I will just weigh in here on your message. From your description it does sound like you may be developing the symptoms of peripheral neuropathy in your legs. There are two tests which people who want to have a definitive diagnosis of PN can have done, a nerve conduction test or a skin punch biopsy (google can explain either of these for you) . Both can affirm or rule out sfpn. Here's a brief synopsis of sfpn: https://www.healthline.com/health/small-fiber-neuropathy . If that is what you have, then you may find it gradually getting worse over time or it might stabilize. It could even recede although that is not what happens to most of the people whose experiences I read about. My wife has it in her feet, and has bad burning, occasionally bad itching and/or pins and needles. Thankfully it has not moved up beyond her ankles yet, except once in a while. I recommend you stay in touch with ( i.e. regularly read) the Mayo Connect neuropathy discussions, and you may gain a lot of insight from people actually suffering from it, which makes a great addition to the inputs you will gain from doctors. Among the many people who I have found particularly helpful are @jimhd (who you've met) @johbishop @rwinney @artscaping @lorirenee1 (I could go on there are so many) Wish I could add more than this meagre response, but hopefully you will begin to get answers you need as you move forward speaking with these knowledgeable folks, PN is a journey and not much of a fun one I'm afraid. Best to you, Hank

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