anyone feel more burning/numbness when sitting

@brayimee My extended version of the scriptural reference is that God never gives us more than we can bear "with the power of the Holy Spirit who lives in your heart". It's when we try to do the hard things in our own strength, as Hank referenced, we get into trouble. So, do everything within your power to help yourself, and give God the chance to work with you.

Jim

Yes, mine too gets worse when I sit down or lay down. The most pain is in the mornings after laying down all night. Peggy

I’m looking for relief from the burning tingling feelings of sensory neuropathy. Does the electrical stimulation seem to help - has anyone had good results - this has been the most uncomfortable feeling. There is also something called calmere pain scrambler therapy. Has anyone tried that? Any info on this would be great.

I was interested in Calmare therapy awhile back, enter it in the search bar. There are some here that tried it, not too successful. Insurance won’t cover it and can get pricey very fast. I use NatraCure socks from Amazon, utilizes gel inserts that are frozen and feel so good at the end of the day. I just keep them in the freezer all the time. When my feet had enough I lay them on my calf or thigh to relieve burning

@notastall78 There is a lot of information online about Calmere scrambler therapy. You can do your own research. From the things I have read about it my impression is that, like seemingly everything nerve related, people have mixed results, i.e. some people get some benefit from it and some get no benefit. As I recall, the downside was that it is expensive to get ($5000 or more out of pocket), there are only a few places that offer it and if you don't live near any of them you would need to travel there and stay for the entire 2 week time period that it is administered. If it does help you may have to go back after some weeks or months for a followup as it sometimes does not last. The only person I personally know of here on Connect who had it done is Lori @lorirenee1 who did not get positive results from it as I recall, although she had only good things to say about the person who administered it

The only thing that seems to be a consistent with nerve pain is that there is NOTHING consistent about it. Things might help some but not others. Something might help for a while and then stop helping, and vice versa. Everyone's story is unique and even a single individual's experience often changes over time. So you should always take things you hear with a grain of salt, but do try different things as some might be helpful to you, which you will only know by trying. The best advice I can give is to reduce stress in your life as much as possible and maintain a healthy lifestyle (good sleep, good food, enough exercise, etc.). At least that may help keep the pain as minimal as it can be. Beyond that just try different treatments that you can find ahd see what they do for you. Best to you, Hank

@notastall78 here is the discussion started by @wisfloj on the Calmare therapy - https://connect.mayoclinic.org/discussion/calmare-scrambler-therapy-anyone/.

There is also a Mayo Clinic patient story on it's use here - Breaking Away From Pain With the Help of ‘The Scrambler’: https://sharing.mayoclinic.org/2015/02/19/breaking-away-from-the-pain-with-the-help-of-the-scrambler/

@johnbishop, good morning. I am glad to be receiving mayo discussion emails again. I don’t know what happened. On August 1st -August 15th the emails had stopped. I tried to send a message to you but it would not go through. I did not even receive the daily digest. This very same occurred last year for several months so I was surprised to get emails sooner. I believe it is an internal issue with the Mayo Clinic discussion rooms.

@avmcbellar I had the same problem last week. My email address was being hard bounced back to the Mayo Clinic Connect's mail server. @colleenyoung our Director was able to get the problem fixed. If you have any problems receiving notifications in the future, please let us know by using the Contact Mayo Clinic Connect form. The link is at the bottom of the left footer column on every Connect page. Here's the actual link - https://connect.mayoclinic.org/contact-a-community-moderator/

@notastall78 @jesfactsmon @wisfloj Just to confirm, I did have Calmare (Scrambler) therapy at 2 separate times, of 10 treatments each. Each session, if I remember, was about 45 minutes long. The first group of 10 sessions lessoned my pain considerably, and in that time, I was able to stop taking Gabapentin. However, the effects only lasted for about 3 weeks, tops. Then I got another group of 10 treatments, and it did absolutely nothing. I do know that everyone is different, and some do get tremendous relief from this treatment. However, I do think many have to get the treatments repeated over time. It was so disappointing for me to get such good relief, but only for a short time. Lori Renee

@johnbishop, Thanks John! I am surprised to hear you had the same problem. I will keep the contact info handy in case I do have issues in the future. Good to know. Thanks again.