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anyone feel more burning/numbness when sitting

Neuropathy | Last Active: Nov 16, 2020 | Replies (177)

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@notastall78

I’m looking for relief from the burning tingling feelings of sensory neuropathy. Does the electrical stimulation seem to help - has anyone had good results - this has been the most uncomfortable feeling. There is also something called calmere pain scrambler therapy. Has anyone tried that? Any info on this would be great.

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Replies to "I’m looking for relief from the burning tingling feelings of sensory neuropathy. Does the electrical stimulation..."

@notastall78 There is a lot of information online about Calmere scrambler therapy. You can do your own research. From the things I have read about it my impression is that, like seemingly everything nerve related, people have mixed results, i.e. some people get some benefit from it and some get no benefit. As I recall, the downside was that it is expensive to get ($5000 or more out of pocket), there are only a few places that offer it and if you don't live near any of them you would need to travel there and stay for the entire 2 week time period that it is administered. If it does help you may have to go back after some weeks or months for a followup as it sometimes does not last. The only person I personally know of here on Connect who had it done is Lori @lorirenee1 who did not get positive results from it as I recall, although she had only good things to say about the person who administered it

The only thing that seems to be a consistent with nerve pain is that there is NOTHING consistent about it. Things might help some but not others. Something might help for a while and then stop helping, and vice versa. Everyone's story is unique and even a single individual's experience often changes over time. So you should always take things you hear with a grain of salt, but do try different things as some might be helpful to you, which you will only know by trying. The best advice I can give is to reduce stress in your life as much as possible and maintain a healthy lifestyle (good sleep, good food, enough exercise, etc.). At least that may help keep the pain as minimal as it can be. Beyond that just try different treatments that you can find ahd see what they do for you. Best to you, Hank

@notastall78 here is the discussion started by @wisfloj on the Calmare therapy - https://connect.mayoclinic.org/discussion/calmare-scrambler-therapy-anyone/.

There is also a Mayo Clinic patient story on it's use here - Breaking Away From Pain With the Help of ‘The Scrambler’: https://sharing.mayoclinic.org/2015/02/19/breaking-away-from-the-pain-with-the-help-of-the-scrambler/

@notastall78 @jesfactsmon @wisfloj Just to confirm, I did have Calmare (Scrambler) therapy at 2 separate times, of 10 treatments each. Each session, if I remember, was about 45 minutes long. The first group of 10 sessions lessoned my pain considerably, and in that time, I was able to stop taking Gabapentin. However, the effects only lasted for about 3 weeks, tops. Then I got another group of 10 treatments, and it did absolutely nothing. I do know that everyone is different, and some do get tremendous relief from this treatment. However, I do think many have to get the treatments repeated over time. It was so disappointing for me to get such good relief, but only for a short time. Lori Renee