anyone feel more burning/numbness when sitting

Posted by notborntoburn @notborntoburn, Jul 27, 2020

Hi I am getting beyond frustrated! Laying down puts my pain at 110% ,sitting in a chair puts the numbness and burning way over my threshold of pain. I can hardly sit at a table to write,eat,carry on a conversation,within minutes I question if my feet and calves actually look as painful as they feel! They look fine yet oh the nerves just go nuts firing in all directions with a bed of hot coals. I have been on every medication to to man,even some unknown! Thanks for your knowledge Marianne

@rwinney

@brayimee I'm still wondering if you've had a full neuropathy workup by your neurologist? Checking a wide spectrum of blood, lyme, deficiencies?? How about a skin punch biopsy to test for Small Fiber Neuropathy which brings along symptoms you display that I identify with?? And I cant remember if you've had a Spinal Tap? Sorry, if I'm redundant in asking.

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@rwinney No one has done anything but scans and some blood work. My husband is so angry because instead of a colonoscopy, my GI refers me to a GI psych. My husband saud what if you have a colon issue. I just don't get it 🙁 I cry everyday because these left side symptoms can be he** I try to be normal when I can, but my legs get so weak.
After my adjustment yesterday, I felt awful. I feel awful after PT and chiro and I've been in for over a month with both. Both my PT and Chiropractor said i have what they feel is a rib out, which can cause a lot if nerve issues. My PT said she things rib 11 and chiro things rib 9/10, but if they are issues and pulling on the spine, those nerves are running to all bowels, kidney, etc. A fellow rib friend said he gets horrible diaphragm spasms and muscle spasms, and I wonder if this is happening to me?? It just does not make sense why this is all my left side.
My doctors have made me question myself more than anyone else I know and they are giving me depression because they have given up.
My husband put his foot down and said GO to WV to see this thoracic surgeon about your possible slipping rib syndrome. If its not that well we go to UofM or Mayo, but maybe the thoracic surgeon can look at your spine too.
Aimee xx feeling so lost.

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@brayimee

@rwinney No one has done anything but scans and some blood work. My husband is so angry because instead of a colonoscopy, my GI refers me to a GI psych. My husband saud what if you have a colon issue. I just don't get it 🙁 I cry everyday because these left side symptoms can be he** I try to be normal when I can, but my legs get so weak.
After my adjustment yesterday, I felt awful. I feel awful after PT and chiro and I've been in for over a month with both. Both my PT and Chiropractor said i have what they feel is a rib out, which can cause a lot if nerve issues. My PT said she things rib 11 and chiro things rib 9/10, but if they are issues and pulling on the spine, those nerves are running to all bowels, kidney, etc. A fellow rib friend said he gets horrible diaphragm spasms and muscle spasms, and I wonder if this is happening to me?? It just does not make sense why this is all my left side.
My doctors have made me question myself more than anyone else I know and they are giving me depression because they have given up.
My husband put his foot down and said GO to WV to see this thoracic surgeon about your possible slipping rib syndrome. If its not that well we go to UofM or Mayo, but maybe the thoracic surgeon can look at your spine too.
Aimee xx feeling so lost.

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@brayimee Aimee, trust YOU. Trust that you (at this point anyway) are the only one who knows that this a real physical issue. It's not in your head. I don't believe that and you need to discount these doctors who are making you feel insecure. Trust yourself, trust your husband who obviously believes in you. And most of all trust God. My wife and I always say to each other that God never gives us more than we can handle. And I believe you are tougher than you think you are, there is a strength inside of you. Just don't give up, stay on your course, whatever you have decided that is. Go with your friend to WV. Your husband is a good man to encourage you in this.

Look at it this way, life is a journey. The journey is all about God's plan for you. Turn to Him for guidance, and after that your job is to just make the best decisions you know how to and do the best job you can to execute these decisions. But leave the results to God as this is His ballgame not ours. And I don't mean to sound patronizing, I'm sorry if I do. I've been through stuff in my life that was hard as well, and I didn't always follow the advice I am giving you. But what I am telling you is the best I can come up with out of my own little pea brain to try to help you. I genuinely care about you and your family, as I think many of us here do. Try to remain calm, deep breathe a lot, and keep putting one foot in front of the other. I will pray for your ultimate success Aimee. Best, Hank

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@fredjan2016

My feet burn more when I sit or lay down. I put them in cool water to ease the pain. I also take prescription pain pills.

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You may find, as I have, that soaking in warm water works better. As the disease progressed cold really hurts. I also use a CBD ointment on my feet and legs.

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@brayimee

@lorirenee1 I cried the entire way home. From every appt that gives me zero answers. I hold to my story. My pain and odd sensations are left side low rib, down to my pelvis and I get nerve pain in my right glute and it developed in my left foot wear I broke it over a year ago. I have so many symptoms and I think it confuses doctors. I have what I think is happening written down with a few other suggestions. Its just hard, so so hard. I want to take my kids hiking, to little beaches, jump on the trampoline, work out again and i can't, my legs get very weak many times if the day. I literally yell at them haha Stop, you are fine, you will move.
I am starting a very very low dose of antidepressant so I can say haha to their faces, and if they were right, I have no problem saying I was wrong and they were right.
Aimee x

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@brayimee Hi again, Aimee. I reread everyone's postings about what might be wrong with you, including all of your descriptions. A light bulb went off in my head when reading that you broke your left foot a few years ago. All of the many symptoms you have could be that you have CRPS, which is often triggered by injury. CRPS is chronic, regional, pain syndrome. (I think I have the name right.) It can be a body wide pain syndrome, that often starts from an injury, and progresses to various symptoms throughout the body. Keep at it, Aimee! Don't allow your docs to defeat you. They are just people. Find new ones. Lori Renee

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@brayimee My extended version of the scriptural reference is that God never gives us more than we can bear "with the power of the Holy Spirit who lives in your heart". It's when we try to do the hard things in our own strength, as Hank referenced, we get into trouble. So, do everything within your power to help yourself, and give God the chance to work with you.

Jim

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Yes, mine too gets worse when I sit down or lay down. The most pain is in the mornings after laying down all night. Peggy

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I’m looking for relief from the burning tingling feelings of sensory neuropathy. Does the electrical stimulation seem to help – has anyone had good results – this has been the most uncomfortable feeling. There is also something called calmere pain scrambler therapy. Has anyone tried that? Any info on this would be great.

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I was interested in Calmare therapy awhile back, enter it in the search bar. There are some here that tried it, not too successful. Insurance won’t cover it and can get pricey very fast. I use NatraCure socks from Amazon, utilizes gel inserts that are frozen and feel so good at the end of the day. I just keep them in the freezer all the time. When my feet had enough I lay them on my calf or thigh to relieve burning

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@notastall78

I’m looking for relief from the burning tingling feelings of sensory neuropathy. Does the electrical stimulation seem to help – has anyone had good results – this has been the most uncomfortable feeling. There is also something called calmere pain scrambler therapy. Has anyone tried that? Any info on this would be great.

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@notastall78 There is a lot of information online about Calmere scrambler therapy. You can do your own research. From the things I have read about it my impression is that, like seemingly everything nerve related, people have mixed results, i.e. some people get some benefit from it and some get no benefit. As I recall, the downside was that it is expensive to get ($5000 or more out of pocket), there are only a few places that offer it and if you don't live near any of them you would need to travel there and stay for the entire 2 week time period that it is administered. If it does help you may have to go back after some weeks or months for a followup as it sometimes does not last. The only person I personally know of here on Connect who had it done is Lori @lorirenee1 who did not get positive results from it as I recall, although she had only good things to say about the person who administered it

The only thing that seems to be a consistent with nerve pain is that there is NOTHING consistent about it. Things might help some but not others. Something might help for a while and then stop helping, and vice versa. Everyone's story is unique and even a single individual's experience often changes over time. So you should always take things you hear with a grain of salt, but do try different things as some might be helpful to you, which you will only know by trying. The best advice I can give is to reduce stress in your life as much as possible and maintain a healthy lifestyle (good sleep, good food, enough exercise, etc.). At least that may help keep the pain as minimal as it can be. Beyond that just try different treatments that you can find ahd see what they do for you. Best to you, Hank

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@notastall78

I’m looking for relief from the burning tingling feelings of sensory neuropathy. Does the electrical stimulation seem to help – has anyone had good results – this has been the most uncomfortable feeling. There is also something called calmere pain scrambler therapy. Has anyone tried that? Any info on this would be great.

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@notastall78 here is the discussion started by @wisfloj on the Calmare therapy – https://connect.mayoclinic.org/discussion/calmare-scrambler-therapy-anyone/.

There is also a Mayo Clinic patient story on it's use here – Breaking Away From Pain With the Help of ‘The Scrambler’: https://sharing.mayoclinic.org/2015/02/19/breaking-away-from-the-pain-with-the-help-of-the-scrambler/

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@johnbishop

@notastall78 here is the discussion started by @wisfloj on the Calmare therapy – https://connect.mayoclinic.org/discussion/calmare-scrambler-therapy-anyone/.

There is also a Mayo Clinic patient story on it's use here – Breaking Away From Pain With the Help of ‘The Scrambler’: https://sharing.mayoclinic.org/2015/02/19/breaking-away-from-the-pain-with-the-help-of-the-scrambler/

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@johnbishop, good morning. I am glad to be receiving mayo discussion emails again. I don’t know what happened. On August 1st -August 15th the emails had stopped. I tried to send a message to you but it would not go through. I did not even receive the daily digest. This very same occurred last year for several months so I was surprised to get emails sooner. I believe it is an internal issue with the Mayo Clinic discussion rooms.

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@avmcbellar

@johnbishop, good morning. I am glad to be receiving mayo discussion emails again. I don’t know what happened. On August 1st -August 15th the emails had stopped. I tried to send a message to you but it would not go through. I did not even receive the daily digest. This very same occurred last year for several months so I was surprised to get emails sooner. I believe it is an internal issue with the Mayo Clinic discussion rooms.

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@avmcbellar I had the same problem last week. My email address was being hard bounced back to the Mayo Clinic Connect's mail server. @colleenyoung our Director was able to get the problem fixed. If you have any problems receiving notifications in the future, please let us know by using the Contact Mayo Clinic Connect form. The link is at the bottom of the left footer column on every Connect page. Here's the actual link – https://connect.mayoclinic.org/contact-a-community-moderator/

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