Should 4+ Pseudomonas be treated?

Are you working in your yard or garden much? I was wondering how/where you keep picking up the pseudo. I know it is invasive in the environment, but, you may be exposing yourself even more to it than necessary. When I looked up this organism, I had read that it is mostly found on leaves of various plants. As an extra precaution, if you do yardwork or love to garden, it would be helpful to wear an N95 mask & gloves, and be sure to wash your hands up to your elbows.

fdixon …… I too have a pseudomonas problem. I've never had a report that said 3+, 4+ or anything like that. The sputum tests I do just say "many" -- so I don't know how that falls into your category. I've been on toby for over a year and am not getting rid of them. I am discouraged about that too. I have difficulty taking it due to shortness of breath but am now doing two weeks on and two weeks off. I cough all the time -- never clear -- always green and have no trouble coughing it up whether or not I do anything. I do nebulize 3% saline twice daily and albuterol twice daily plus the toby. I'm wondering if anyone has any other med that has helped to rid pseudomonas. My doctor is with Mayo's in Rochester (for what that's worth). Appreciate all comments concerning pseudomonas.

Migizil, Here is that article. https://ntminfo.org/wp-content/uploads/2020/07/NTMguidelines2020.pdf Pseudomonas is often seen in conjunction with the various NTMs, and some of the antibiotics mentioned for NTM will also kill Pseudomonas.

megan123 I much appreciated reading your post. You are the first person I've known who had any trouble with toby (except what problems I've mentioned). It was good to know I'm not the only one fighting this problem. I'm on it again but not sure how long I can stay. It almost stops me from breathing after about 10 days. I'm never rid of the pseudomonas but then I sometimes think it may be because I'm probably much older than most of you. I'm past 79 now and oftentimes believe it may be my age holding me back. I truly don't know.

megan123 I much appreciated reading your post. You are the first person I've known who had any trouble with toby (except what problems I've mentioned). It was good to know I'm not the only one fighting this problem. I'm on it again but not sure how long I can stay. It almost stops me from breathing after about 10 days. I'm never rid of the pseudomonas but then I sometimes think it may be because I'm probably much older than most of you. I'm past 79 now and oftentimes believe it may be my age holding me back. I truly don't know.

windwalker…… no, I do no yard work at all. Try to stay away from most everything. House is totally vacuumed three times weekly. I have an in-home office and I spend a good deal of time in there. Do some cooking...… but nothing that I feel is detrimental. Perhaps I'm missing something.

Hi fdixon63...I too have pseudomonas...they tried to irradiate it, but were unsuccessful...for the last year or so I have been on Colistin every other month that pushes it back to not showing up in my sputum...by the end of the month it is back to moderate...I tried Toby but found it really harsh.....I’m in good shape otherwise, exercise etc...I live in Toronto so we have only 3 nebulized drugs..the other is Cayston, but I will likely have to pay...pseudo is a nasty bacteria...airway clearance is especially important do be diligent x 2a day to get rid of mucous..🇨🇦

windwalker…… I feel like I can only get about 20% of air when I breathe. I took oxygen level with the clip on finger type tester and it was 85%. Can't do too much at that time. It rather scares me to go on with it. So, now they have me on 2 weeks on -- 2 weeks off. I'm on again right now. I've never had any coughing relief but have been unable to do the 28 day program. I've done it on a lesser scale for over a year now. I'm going to inquire about adding the second product to it. Thank you