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@jada

I came across mayo clinic connect as it piped up on my cell phone. Beginning in1998 I became extremely fatigued. I would even come home from work at my lunchtime, set an alarm for 20 minutes, drive back to school. Leave school at 4:00 and back home on the couch until 7 pm and back to bed at 9:00 until 7 am in the morning. During the summer with school out, I would sleep on the average 14-16 hours. I was not diagnosed wit Sjögren’s until 2010. I begged my doctors, obgyn, cardiologist, primary care, Dermatologist, Ophthalmologist that put me on Restasis 8 years ago. I can’t seem to get answers from my Rheumatologist oI feel like a hypochondriac and I’m sure my husband gets tired Of me complaining. I just want to know more information of what to expect or not to expect so I’m not constantly complaining. I was at Mayo the first of the year with my cousin having some tests run since she had her spine fused and then having a mastectomy and a year later the 2nd mastectomy. Ive searched several website dealing with Sjögrens and I think I need to stay away them. The info I get is pretty scary. I prefer to get info from a reliable website. I hope I haven’t wasted your time.

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Replies to "I came across mayo clinic connect as it piped up on my cell phone. Beginning in1998..."

Hi Janet @jada, You definitely are not wasting anyone's time! Connect is a patient to patient support site where you can meet other members with similar symptoms and learn what helps them. There is another discussion on Connect that you may want to join and read what has been shared. if you select Newest to Oldest at the top of the discussion below the description on the right side, you will see the most recent posts at the top.

Sjogren’s Syndrome – Introduce yourself and meet others: https://connect.mayoclinic.org/discussion/sjogrens/

Since you mentioned being extremely fatigued, you may also be interested in the following discussions.

> Groups > Just Want to Talk > Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

There is also another similar discussion that you might find interesting.
> Groups > Women's Health > Chronic Illnesses of Millions of Women Left Untreated
https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

Do you have any specific questions you are trying to get answered?