1. < MAC & Bronchiectasis

Mac + lung cavity

Posted by bevmac @bevmac, Jun 24, 2020

my 3 centimetre cavity has healed in 16 months with the 3 antibiotics - both shocked and delighted. Preventative medicine doctor assisted my immune system cope - also recommended a vegan diet for last 9 months.

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kathyhg | @kathyhg | Sep 8, 2020

Does anyone find that they get a dry throat from 7% twice a day? If so, what helps?

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2 replies
judyhodgern | @judyhodgern | Sep 8, 2020
In reply to @sueinmn "Don - I use an Aerobika for airway clearance, and with a huff cough am able..." + (show)
@sueinmn

Don - I use an Aerobika for airway clearance, and with a huff cough am able to bring up lots of mucus, so we have not considered a vest at this point. My pulmo is monitoring, but so far I'm symptom-free.
Sue

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So good!

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Mentor
Sue, Volunteer Mentor | @sueinmn | Sep 8, 2020
In reply to @kathyhg "Does anyone find that they get a dry throat from 7% twice a day? If so,..." + (show)
@kathyhg

Does anyone find that they get a dry throat from 7% twice a day? If so, what helps?

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Room temperature water right after neb. I also have used Biotene lozenges, intended for dry mouth, and they help a little.

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1 reply
kathyhg | @kathyhg | Sep 8, 2020

Thanks! I’ll try both.

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dulwich | @dulwich | Sep 8, 2020
In reply to @kathyhg "Does anyone find that they get a dry throat from 7% twice a day? If so,..." + (show)
@kathyhg

Does anyone find that they get a dry throat from 7% twice a day? If so, what helps?

Jump to this post

More dry mouth than throat- I try to rinse with water immediately after and also have found Biotene mouth rinse helpful

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kathyhg | @kathyhg | Sep 8, 2020

Both actually; it mostly bothers me at night and i used to think maybe I was dehydrated or something like that but then I realized it is likely from the saline. I’ll get the mouth rinse when I get the lozenges.
This is really helpful, as usual. I was going to ask my doctor and then i realized I’d probably get better suggestions here 🙂
Thanks again,

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1 reply
judyhodgern | @judyhodgern | Sep 8, 2020
In reply to @kathyhg "Both actually; it mostly bothers me at night and i used to think maybe I was..." + (show)
@kathyhg

Both actually; it mostly bothers me at night and i used to think maybe I was dehydrated or something like that but then I realized it is likely from the saline. I’ll get the mouth rinse when I get the lozenges.
This is really helpful, as usual. I was going to ask my doctor and then i realized I’d probably get better suggestions here 🙂
Thanks again,

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I have terrible hoarseness and sore throat Almost continuously As a side effect from the Arikayce I take for my MAC everyday. My pulmonologist in Denver told me to get strepsils lozenges —you have to get them on line. They are very soothing and help a lot. The are kind of expensive but work for me. I keep them in fridge or they become sticky. Hope thy can help someone else too! Judy

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2 replies
heathert | @heathert | Sep 9, 2020
In reply to @judyhodgern "I have terrible hoarseness and sore throat Almost continuously As a side effect from the Arikayce..." + (show)
@judyhodgern

I have terrible hoarseness and sore throat Almost continuously As a side effect from the Arikayce I take for my MAC everyday. My pulmonologist in Denver told me to get strepsils lozenges —you have to get them on line. They are very soothing and help a lot. The are kind of expensive but work for me. I keep them in fridge or they become sticky. Hope thy can help someone else too! Judy

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@judyhodgem strepfen are the best, strepsils and neurofen together, fantastic.

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1 reply
irene5 Irene Estes | @irene5 | Sep 9, 2020
In reply to @judyhodgern "I have terrible hoarseness and sore throat Almost continuously As a side effect from the Arikayce..." + (show)
@judyhodgern

I have terrible hoarseness and sore throat Almost continuously As a side effect from the Arikayce I take for my MAC everyday. My pulmonologist in Denver told me to get strepsils lozenges —you have to get them on line. They are very soothing and help a lot. The are kind of expensive but work for me. I keep them in fridge or they become sticky. Hope thy can help someone else too! Judy

Jump to this post

@judyhodgern Yes, those lozenges are a big help. I get them on Amazon. Arikayce has the sore throat and the hoarseness as a common side effect. I’m ok with that, if ultimately it works and helps to kill MAC. irene5

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1 reply
judyhodgern | @judyhodgern | Sep 9, 2020
In reply to @irene5 "@judyhodgern Yes, those lozenges are a big help. I get them on Amazon. Arikayce has the..." + (show)
@irene5

@judyhodgern Yes, those lozenges are a big help. I get them on Amazon. Arikayce has the sore throat and the hoarseness as a common side effect. I’m ok with that, if ultimately it works and helps to kill MAC. irene5

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Hi Irene are you on Arikayce if so how long have you been on it and does your throat continue to be that way I would assume that it would I love to use they called him for fruit and they are only 70 cal I believe and they are frozen fruit sickles on a stick and they are wonderful and get them all different flavors. Blue skies-Judy

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