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Eyes and Neuropathy

Eye Conditions | Last Active: Dec 23, 2023 | Replies (299)

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@phoenix0509

@bustrbrwn22 , it was nice of you to reach out and show concern about my eye conditions. At the moment the eyes are stable, I do have some photophobia (shooting stars) in right eye which show up when its dark inside or outside. For my dry eye syndrome I use Restasis (cyclosporin) eye drops per the Ophthalmologist. My biggest problem is pain in all extremities which is continuous since attempting to decrease my prednisone that I take for Polymyalgia Rheumatica. Which has lead me to question the original diagnosis of PMR. I am trying to be seen at Johns Hopkins in Baltimore for this widespread radiculopathy like pain. So if anybody has a connection to Neurology or Neurosurgery at JH. send me a note. Initial review of neck does not show obvious problems. Got to look again and think outside the box. Best, david

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Replies to "@bustrbrwn22 , it was nice of you to reach out and show concern about my eye..."

@phoenix0509 Best of luck to you, sir. 🍀

@phoenix0509 David, Polymyalgia Rheumatica, radiculopathy, photopsia and dry eye, you have it all. Oh, and just for good measure, toss in peripheral neuropathy as well, you know, the kind that makes it almost impossible for you to function at all? Now you've got the complete package. Gee Whillikers David, what's the deal anyway? You must've been one bad hombre in another life. Did you steal kid's Halloween candy and throw dirt balls at sweet little old ladies walking down the street?

Just my way of saying I hope you get an in to JH. Feel free to show them this post. Or don't, better yet. 😊 Cheers, Hank