What causes the loss of mucus membrane?

@learningstudent . I agree with funcountess YOU need to go to a teaching hospital to get a diagnosis the longer you put it of the worse it will be for you . So go to this University hospital if you cant get into Mayo . They are both researching hospitals that will find out your problem . Tell them about the yellow stools your having .

What “membrane”are you discussing? The BBB?

At this moment they do not allow in person visit in uw. Would u guys give me a bit of specific details about how to deal with this? Like how to make the docs diagnose the problem? Get a primary doc there?

@learningstudent I think you might try calling a university medical center, say you are a new patient, and that you have some very unusual things going on with your body. See if you can get a virtual appointment in the rheumatology Clinic because you assume it’s autoimmune. Before you have the appointment, write down everything that you can think of that has happened in the past months (even if you don’t think they’re related to the mucous membranes. Have some photos that you can email the doctor if she wants them.

My husband had to do this for me when I got so sick 2 years ago. While I was hospitalized, he called the university med center and got us an appointment. They knew what I had and have been treating me ever since. Most local doctors have not seen or heard of all the immune diseases, so you really have to advocate for yourself.

Best of luck to you and please let me know what you do!

Hello @learningstudent,

@becsbuddy's advice about writing everything down before seeing a new specialist is very good. Here is some information from another Mayo Connect discussion on how to get off to the best start with a new specialist. If you read it I think it will help you to be better prepared to visit with a specialist.
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/

Thx u. But do we have to see the primary doc first? There are a lot of clinics that belong to uw medical center. Do they still belong to us. I have an app with doc in northgate.

@learningstudent Regarding seeing your PCP first. Your insurance company will have to answer that question. Check with them before visiting a new doctor.

Hi learningstudent,
Your questions can only be answered by Uof wash.medical center, and your insurance company. It all depends on what kind of health insurance you have. With your symptoms
You need medical attention, and the sooner the better.
Take care,
Funcountess

The question is if uw is somewhat similar to Mayo Clinic? I am just wondering how quick and how they diagnose the problem? Do multiple docs work together to come up with the diagnosis? Will uw medical center does the same thing? Cuz I have seen a few docs in Polyclinic and they do not seem to really care my health without much follow-up.

Here are what I have done the Ana reflex panel and the result is as followed:

- Screen negative by IFA and multiplex.
Therefore negative for the following specific antibodies: dsDNA,
chromatin, ribosomal P, Sm, RNP, SSA/Ro, SSB/La, Centromere, Scl70
and Jo1.”

- Anti SSA/RO & ANTI SSB/LA are less than 0.2.

- VITAMIN B12,SRM and FOLATE,SERUM are also normal within range.

Does it mean that I do not have immune disorder? Cuz I have messaged the neurologist and she said no. I do not have immune disease. Will the result be accurate or the test is only effective to rule out certain immune diseases or just tells us certain diseases are likely to happen? Everything health problem happened to me so abrupt.

@learningstudent You posted some lab values several days ago. No one on MayoClinicConnect is a health professional so we’re unable to comment on them, sorry. Have you found anything at UW yet? Just try to get an appointment with a rheumatologist and see if you get any answers. Will that work for you?