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What causes the loss of mucus membrane?
Hi all, I am just wondering what causes losing all mucus membrane or sweating, saliva or any secretion? Recently I seem to lose oil on my face, do not sweat, dried mouth and dried skin and also lose all the snot and nasal mucus? No doctors could diagnose what is happening and that makes me scare and anxious.
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@learningstudent I agree with @funcountess. If the specialists you have seen do not have an answer you do need to persist and find an answer. Not being able to work and not having a diagnosis puts you in a difficult place.
It is still your right to seek another opinion. Will you consider it?
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2 ReactionsYes I will it it if they cannot diagnose. I am just wondering how much does it cost for diagnosis in Mayo Clinic? I went to see specialists in Swedish and cardiologist said my heart is fine. But the problem is my heart rhythm is fine but whenever I wake up from sleep I have heart palpitation and heart rate increases rapidly and sometimes up to 110 and then drops after several secs. This week I m seeing the ent specialist regarding my nose and I am just afraid that the specialist will not give me a diagnosis cuz some other specialists - lung doc or neurological doc cannot find out what happens.
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3 Reactions@learningstudent If you contact Mayo Clinic (I posted the link to the appointment desk) they can give you information on how your insurance would work for appointments at Mayo. You do need some additional help. If a diagnosis helps you feel better and gets you back to work it might be worthwhile.
What do you think?
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1 ReactionHi,
1. You need to contact Mayo in Scottsdale,Az for their fees. Do you have health insurance?
2. You have Virginia Mason clinics, and U of Wash.
3. Somebody needs to take charge of your health care, and that is YOU.
with complex issues, it does take multiple doctors. That is why places like teaching universities are best, your records are all under one roof.
Have you had liver function tests, bile ducts gull bladder Been checked out?
Keep us posted.
Funcountess
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2 Reactions@learningstudent . I do hope you see a infectious disease specialist . With yellow stools sounds like you need to see s G.I Dr and tell him of your yellow stools Are you eyes yellow? A lot of this sounds like a gallblader or liver problem . Dont put this off please see one of these Dr.s or both. The G.I Dr would be the first one I think
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1 ReactionI have Erosive Lichen Planus, It began with the soft tissue in my mouth stuffing off which has now affected all my soft tissues. The Mayo Clinic may be great for you. But before leaving your home turf in Seattle, why not check with a couple of the finest Health Centers in the USA. The University of Washington Hospital and clinics. If necessary they would refer you to the Fred Hutch of there is any cancer involve. With my elusive and progressive disease, I have found 2 things to be true. 1. Stress makes it worse so I exercise vigorously. 2. The University Hospitals have the more research available to you and are interested in having the tenacity to search and stick with you until they can diagnose and keep treating you as needed. I don't have personal experience with Mayo because I can only be seen in Rochester and I live on the West Coast. The costs can be prohibitive and those are things we all need to be aware of. I wish you good health. Over the last 35 years my best treatment and help have been at SFU and San Francisco and the University of Washington) Hospital clinic.
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4 ReactionsGood morning @learningstudent . Sounds to me like you may have an autoimmune disease. They can be strange and difficult to diagnose. Mine took at least 8 months before I got a diagnosis. I agree with going to a major medical center or university medical center near you. I found this web site from the National rare diseases organization that discusses losing mucous membranes. Strangely enough, all autoimmune diseases come under rheumatologist. I wish you luck in quickly finding a diagnosis and treatment.
https://rarediseases.org/rare-diseases/mucous-membrane-pemphigoid/
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1 ReactionI suggest you read about panic attacks and how to stop them on the web. A paramedic explained it to me and I learned on my own to not have any more attacks, without going to the doctor. My older sister had them for years, would not follow instructions from the doctors, took the wrong medicine in the wrong way, and was told to not call the squad and go to the emergency room anymore. She continued this way for many years and lived to her late nineties, avoiding her family. If that is not the reason for the increased heart rate, at least you will be educated about the matter. Sometimes we can learn to be our own advocate for solving problems. I have a heart rhythm problem but the doctor said don't worry about it. That's no reassurance, so I work on diet and exercise because I am knowledgeable about the nutrition and I raise my own garden. If I have any serious problems in the night, my former paramedic son is available to check on me and calm me down. I don't need a doctor for everything anymore but I still read all I can about health. Dorisena
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1 ReactionSeeing specialists need referral but messaging the docs take a while to get back to u. My primary doc keeps saying anxiety causes all these, which is not true. I might be a little anxious about health due to undiagnosis but it is not anxiety that causes this. So I am so frustrated and decide to switch docs.
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1 ReactionHi,
This is what I’m talking about. Too many run of the mill doctors have little to no experience with complex cases.
The sooner you get to a teaching university the better. Why not U of Wash. they have a medical school and clinic.
Try not to waste too much time. It’s your health.
Funcountess
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