Hi @tedwueste, and welcome to the Mayo Clinic Transplant group. I am happy that you have joined because this is the place where you can meet and interact with others who have questions and experiences to share about stem cell transplants.
I want to commend you on your desire to share and support others. To get started, would you tell us a little about yourself and the process that leads up a stem cell transplant?

@tedwueste, Since you are a new member on Connect, I would like to help you to get started some tips on how to be a contributing member of a community that works — a safe space where members support one another and together we help improve our health and well-being.
Tips for Participating in an Online Community
https://connect.mayoclinic.org/page/about-connect/newsfeed-post/tips-for-participating-in-an-online-community/
I am a liver and kidney transplant recipient, and I look forward to learning more about stem cell transplant from your viewpoint.

Hi @tedwueste, I'd like to add my welcome. You'll notice that I moved your message to the Blood Cancers group (https://connect.mayoclinic.org/group/blood-cancers-disorders/) to this discussion about stem cell transplant for AML. I think @bradmm will appreciate hearing your experience. Here you'll also meet @loribmt @lakegirl409 @kjjjrader and others.

Ted, can you talk more about the heart damage and blood clots? How are those being managed?

Ted, my wife had her allo stem cell transplant on June 9 after chemo for AML. Previously diagnosed with MDS and CLL. She was released from the hospital on July 1 and is now at home. She's having lots of trouble with the emotional end of this and goes up and down everyday. When you saying that you're feeling better than you've felt in years, do you mean physically? I don't think my wife ever felt bad physically other than a little fatigue but was going to the gym 4 times a week back in January before her AML diagnosis that put her in the hospital for the first time this year. BTW, where are you located, what hospital did you transplant?

Hi Ted and welcome to Connect. You’ll find this a really great outlet for shared stories from people who have walked the walk. We’re very supportive, understanding an empathetic. I recently celebrated my first year transplant birthday June 2019 so we’re not that far apart. That was about 4.5 months after my diagnosis and treatment of AML. I’ve had some issues with GVHD but not the heart damage and any blood clots. Though I do believe a lot of our recovery and what we experience can be related to what our body’s were like before we had the transplants; preexisting conditions. I’m so happy that you survived the Hopkins lymphoma! But a nasty surprise with the AML! But, better living through chemistry, huh. ☺️ The chemo for both AML and transplant can be rough. Especially that week before transplant with what we jokingly referred to the “mother of all chemos’. LOL. But you’re right, it is amazing on the other side! Staying positive, having a great sense of humor and sense of adventure keep us going daily! After all, how many of us can say we have 2 sets of DNA, switched blood types and are little Frankenstein’s monsters. Hehe. Sounds like a plot for a great book! Stay strong!! Lori

Wow! With all that you are going through physically I admire your positive attitude and courage. Bravo my friend. Keep on keeping on.!

@tedwueste You brightened my day with your fighting spirit.