1. < Lung Cancer

Lung cancer with joints and muscles sore.

Posted by richcolleen @richcolleen, Apr 10, 2020

I have stage 4 lung cancer which has spread before caught. What I’m wondering if anyone has problems with all joints sore? I was on chemo and immune therapy 8 months and since (I quit chemo due to very sick days) been on just immune therapy and felt pretty good until the last week.

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meka | @meka | Apr 30, 2020
In reply to @richcolleen "My Dr. (regular) wanted to give me muscle relaxers. Should have agreed. Have oncologists here but..." + (show)
@richcolleen

My Dr. (regular) wanted to give me muscle relaxers. Should have agreed. Have oncologists here but he is worthless. Get Keytruda every 21 days. Per Dr at Mayo.
Have another appointment June 1st and 2nd for scans, blood work and Dr. at Mayo. Usually every 3 months but with Coronavirus will be 5 months. Which was ok with me. Trying to find safe meals and hotels durning this time.

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Which Mayo?

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nicee | @nicee | May 1, 2020
In reply to @richcolleen "My Dr. (regular) wanted to give me muscle relaxers. Should have agreed. Have oncologists here but..." + (show)
@richcolleen

My Dr. (regular) wanted to give me muscle relaxers. Should have agreed. Have oncologists here but he is worthless. Get Keytruda every 21 days. Per Dr at Mayo.
Have another appointment June 1st and 2nd for scans, blood work and Dr. at Mayo. Usually every 3 months but with Coronavirus will be 5 months. Which was ok with me. Trying to find safe meals and hotels durning this time.

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@richcolleen I tried the muscle relaxer with out much help so did not continue with use.

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meka | @meka | May 1, 2020
In reply to @richcolleen "Rochester MN" + (show)
@richcolleen

Rochester MN

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Wondering where a good place to stay and be safe 😊. Don't know if I can post where I stay, but I have a great place. Let me know if it can be posted.

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1 reply
richcolleen | @richcolleen | May 1, 2020

I will be staying at Holiday Inn Express June 1 and 2nd. Never stayed there so will find out.

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meka | @meka | May 1, 2020

Ok, I stay at Centerstone Plaza. Close to everything, great shuttle, including weekends. They have what I call apartments, full kitchen, bedroom. Walking distance to co-op groceries, parks. Have stayed there three times now and the people and place is starting to feel like a second home. It's not a chain, so you do get to know them. They have a wonderful resturant, but love being able to do my own. Tried other places, but always return. Very accommodating and flexible on stays, which is important because I never know. Also pet friendly if needed. Because I come over to Mayo by myself, comfort and safety is #1 for me.

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 3, 2020
In reply to @meka "Wondering where a good place to stay and be safe 😊. Don't know if I can..." + (show)
@meka

Wondering where a good place to stay and be safe 😊. Don't know if I can post where I stay, but I have a great place. Let me know if it can be posted.

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@meka, you can most certainly post recommendations for places to stay when at Mayo Clinic. I'm glad you did.

@richcolleen all the best with your upcoming appointment. In case you have questions about visiting Mayo Clinic during COVID, see this website: https://www.mayoclinic.org/covid-19
And in particular, this page: https://www.mayoclinic.org/covid-19/rochester

As always, don't hesitate to ask questions.

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1 reply
meka | @meka | May 4, 2020
In reply to @colleenyoung "@meka, you can most certainly post recommendations for places to stay when at Mayo Clinic. I'm..." + (show)
@colleenyoung

@meka, you can most certainly post recommendations for places to stay when at Mayo Clinic. I'm glad you did.

@richcolleen all the best with your upcoming appointment. In case you have questions about visiting Mayo Clinic during COVID, see this website: https://www.mayoclinic.org/covid-19
And in particular, this page: https://www.mayoclinic.org/covid-19/rochester

As always, don't hesitate to ask questions.

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Thanks Colleen, thought I would get kicked out. Update from me,. Next appointments June 30, Rochester. Doing ok, being very careful and will continue to be careful. Question for those that have had radiation, sbrt, is it normal to have decreased breath capacity on the side of treatment? I'm finding stamina to be a problem.
Sure hope everyone is doing their best amidst the craziness. Find working on my yard, preparing for biggest garden in a long time is helping bunches. Also creating best dog day ever for Summitt.

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