1. < Chronic Pain

Scoliosis: In pain morning noon and night

Posted by meandyou @meandyou, Apr 1, 2020

I have scoliosis. Have had since 12yrs I finally found a pain management dr. And had my pain under control with medication. Then. my state switched me to Obama care! My clinic refused it and they told me i would not be able to use there service any more. Im in pain all the time Ive done p.t. tens injections exercise heat ice nothing else works but medication! I feel like im walking around with a ten lb. BOWLING BALL on my shoulders. Im just so tired from hurting every day!😪

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lioness | @lioness | May 15, 2020
In reply to @stimme "I suspect you are in the US? I am in the UK. Anadin is a brand..." + (show)
@stimme

I suspect you are in the US? I am in the UK. Anadin is a brand of painkiller sold in the UK and Ireland, launched in 1932, originally by American pharmaceutical company Anacin and currently by Pfizer. Anadin Extra – aspirin, paracetamol and caffeine based

Looks like you may be right!

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I @stimme I thought they maybe similar . Im in the USA Have a good day

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stimme | @stimme | May 15, 2020

Hi, Lioness, thanks. You too and try not to listen to too many Trump statements. I'm sure it's not good for the health!

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1 reply
lilypaws | @lilypaws | May 15, 2020
In reply to @nancyguy "Thank you, lilypaws, for your prayers and your comments. My endocrinologist is with the Cleveland Clinic...." + (show)
@nancyguy

Thank you, lilypaws, for your prayers and your comments. My endocrinologist is with the Cleveland Clinic. I live in Ohio and am not able to see someone at Mayo. I understand Mayo was rated No. 1 in U.S., and am glad that you most likely are "in good hands." A special prayer for you for successful surgery and good health through the coming years. I have much to be thankful for; my PT told me that my condition would stabiliize, and he was right, because the myofascial treatments relieved the pain greatly, and I have a wonderful son who is continuing the therapy. My PT is excellent; he is with the Cleveland Clinic. He treated me about three times a week for a period of six weeks, and taught me simple exercises
.God's blessings from Nancy G.

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@nancyguy Thank you and the same to you. It sounds like you are getting good help. God's Blessing to you too. Jeanie

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lioness | @lioness | May 15, 2020
In reply to @stimme "Hi, Lioness, thanks. You too and try not to listen to too many Trump statements. I'm..." + (show)
@stimme

Hi, Lioness, thanks. You too and try not to listen to too many Trump statements. I'm sure it's not good for the health!

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@stimme You are so right . I only put on around 6 He is just to full of himself .

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Stephen | @wsh66 | May 16, 2020

I came by scoliosis late in life as the result of cancer surgery. I have an intrathecal pain pump. It's a small pump surgically placed in my tummy with a catheter running up my spine. It leaks about 4 mg of narcotics directly into my spinal fluid over 24 hours. I can also take another milligram of Narcotics in 10 doses over 24 hours by means of a remote control. Narcotics delivered in this fashion are one two three hundred times more effective than drugs that you swallow and have to run through your digestive system.

I don't know if your insurance will pay for this but it is the ultimate solution for this kind of pain that's just unrelenting. The volume of narcotics is so small there are no side effects, no constipation, no drowsiness. Search under my handle, wshh66, I have written extensively about my experience with the pain pump and my experience with pain clinics. I was treated and mistreated for 20 years plus by a series of doctors who were willing to treat me and a lot more doctors who are not willing to treat me. I was accused of being a drug addict, I was treated like a criminal and I was made to feel guilty for being in pain. I became a patient of the pain clinic at the University of Minnesota. There was a process I had to go through. I had to talk to a psychiatrist I had to talk to a psychologist, a neuropathologist and a palliative care doctor. Once I cleared those hurdles I was given very large doses of Narcotics. The side effects were tough and the relief was not complete. When I had cancer I had chronic pneumonia and a lot of infections so I had to wait for one year to pass infection free before they would give me the pain pump. I've had it now for more than 3 years and have the best quality of life I've had in the last 25 years.

I would encourage you to read up on the intrathecal pump and see if you think it might be right for you. If you can find someone who will put it in for you, it's much safer than pills and you cannot overdose, you cannot get high, and you cannot give your drugs away. I hope you find an answer love and blessings.

I should explain that originally I had pain all over my body but mostly on my right side due to pinched nerves. When I had my cancer surgery they remove so many lymph nodes that I got a thing called dropped foot. All of a sudden my left leg was an inch longer than my right leg and it was causing me to fall down but after that ended basically the extra leg hammered the spine to bend out to the right which fixed the sciatica I had but created it even worse on the left side.

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1 reply
marye2 | @marye2 | May 20, 2020

Do get referral to PT. It is amazing what they have for these things now. Lots of the pain is referred from tight, weak muscles surrounding the area. It is not a cure, but consistent use of the stretches helps immensely. I am on no opioids and pain managed - Etodolac, plaquenil. See if you can find a Rocabado trained PT.

REPLY
marye2 | @marye2 | May 20, 2020
In reply to @wsh66 "I came by scoliosis late in life as the result of cancer surgery. I have an..." + (show)
@wsh66

I came by scoliosis late in life as the result of cancer surgery. I have an intrathecal pain pump. It's a small pump surgically placed in my tummy with a catheter running up my spine. It leaks about 4 mg of narcotics directly into my spinal fluid over 24 hours. I can also take another milligram of Narcotics in 10 doses over 24 hours by means of a remote control. Narcotics delivered in this fashion are one two three hundred times more effective than drugs that you swallow and have to run through your digestive system.

I don't know if your insurance will pay for this but it is the ultimate solution for this kind of pain that's just unrelenting. The volume of narcotics is so small there are no side effects, no constipation, no drowsiness. Search under my handle, wshh66, I have written extensively about my experience with the pain pump and my experience with pain clinics. I was treated and mistreated for 20 years plus by a series of doctors who were willing to treat me and a lot more doctors who are not willing to treat me. I was accused of being a drug addict, I was treated like a criminal and I was made to feel guilty for being in pain. I became a patient of the pain clinic at the University of Minnesota. There was a process I had to go through. I had to talk to a psychiatrist I had to talk to a psychologist, a neuropathologist and a palliative care doctor. Once I cleared those hurdles I was given very large doses of Narcotics. The side effects were tough and the relief was not complete. When I had cancer I had chronic pneumonia and a lot of infections so I had to wait for one year to pass infection free before they would give me the pain pump. I've had it now for more than 3 years and have the best quality of life I've had in the last 25 years.

I would encourage you to read up on the intrathecal pump and see if you think it might be right for you. If you can find someone who will put it in for you, it's much safer than pills and you cannot overdose, you cannot get high, and you cannot give your drugs away. I hope you find an answer love and blessings.

I should explain that originally I had pain all over my body but mostly on my right side due to pinched nerves. When I had my cancer surgery they remove so many lymph nodes that I got a thing called dropped foot. All of a sudden my left leg was an inch longer than my right leg and it was causing me to fall down but after that ended basically the extra leg hammered the spine to bend out to the right which fixed the sciatica I had but created it even worse on the left side.

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So, also get a referral to PT so you keep muscles strong. May be able to improve dropped foot, and relieve other weaknesses. I have MCTD, so the complementary effect to pain meds is great.

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Stephen | @wsh66 | May 20, 2020

I have a couple of PT's I just love. What is MCTD? Thanks

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1 reply
marye2 | @marye2 | May 20, 2020
In reply to @wsh66 "I have a couple of PT's I just love. What is MCTD? Thanks" + (show)
@wsh66

I have a couple of PT's I just love. What is MCTD? Thanks

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MCTD is Mixed Connective Tissue Disease. It has many of the symptoms of Lupus. Rare disease, have had it about 24 years. Mostly soft tissue - tendons, muscle etc. It is diagnosed with blood work. Those who amend their diet to non-processed and exercise seem to do better. mctdfoundation.org

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