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Asthma and Interstitial lung disease
Asthma & Allergy | Last Active: Aug 21, 2023 | Replies (19)Comment receiving replies
Hi Sue, Thank you for your support. I am taking the nebulizer every day and it's helping. My family gave me an apple watch for Christmas and my cardiologist said it will show if my heart rate goes too high and I get an AFIB episode. If that happens, I am to take an extra metopropol and it should lower the heart rate. I had a "phone" appointment with him and he reassured me as I was very concerned about going to the hospital if my rate goes too high. My kids have been super and my "unemployed" son and his family walk over to see my husband and I every morning . We stay in the garage and tell the kids (2 &3) we are sick so they play in the driveway and don't come near us. They don't stay long but it really helps. I realize that I am very lucky to have a great family and will practice my yoga breathing when I get depressed. My rheumatologist told me he can't help me as all of his medications will lower my already low immune system. So I have one less doctor to see. Unfortunately, I no longer can take NSAIDS and I am in constant pain. I am going to increase my CBD/THC as I know the pain is causing me to be depressed. It's frustrating but I will keep listing all the good things I have and try to get rid of the negativity. Thank you for your help. Stay safe.
Replies to "Hi Sue, Thank you for your support. I am taking the nebulizer every day and it's..."
I’m sad to hear this. I am 73 and almost in the same ‘boat.’ My pulmonologist wants me to start Tezspire injections. I am afraid of the side effects.
Perhaps, journaling will help. Not so much at the moment of writing, but when you look back and see improvement. I use Face Book, strangely. Because it helps to tell others your story.
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@jmb73 I am glad you are figuring out some coping mechanisms.
I too had to stop all NSAIDS some time ago and understand your struggle with pain - does your yoga breathing help with that at all? Also, there are some NSAID topical gels available by prescription that some rheumatologists use (Piroxicam and Diclofenac are 2) - maybe you can ask about those - they help me some on really bad days.
It might help to put a name to the awful feelings we are all dealing with right now - Ginger posted this on another discussion last night, maybe it will help you too. https://connect.mayoclinic.org/discussion/a-new-kind-of-grief-in-these-times/?pg=1#comment-384115
Hang in there, and check in with us from time to time - it is so unfortunate to get a scary diagnosis at the same time as our world is turned upside down by this virus.
Enjoy your family - my grands are near the same age - my daughter takes little video clips for us every day, of silly things or cute - we watch them over and over to feel better. Your son sounds very thoughtful - maybe he would do the same if you ask?
Stay calm, stay safe
Sue