Recovery after surgery for Tarlov cyst: What to expect?

Posted by anita1940 @anita1940, Mar 11, 2020

Am looking for post operation recovery discussion

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Tarlov cyst post operative recovery discussion

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Had tarlov cyst surgery in December and am still suffering from severe neuropathy can someone tell me how long the nerves take to revive .

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@anita1940

Tarlov cyst post operative recovery discussion

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Hello, @anita1940 and welcome to Mayo Connect!

Connect does have a discussion group on the topic of Tarlov Cysts. Here is the link to that discussion, https://connect.mayoclinic.org/discussion/perineural-or-tarlov-cysts/

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@anita1940

Had tarlov cyst surgery in December and am still suffering from severe neuropathy can someone tell me how long the nerves take to revive .

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@anita1940
Hello Anita,
Although I’m not very familiar with Tarlov cysts
I know a tiny bit about them because an acquaintance of mine in England was having seizures and diagnosed with Idiopathic Epilepsy but upon further testing by another Neurologist the cysts were discovered removed and no more seizures. I don’t remember if he had neuropathy but I have had it for over 30 years. Sometimes nerves regenerate sometimes they don’t. However the symptoms may change over time for whatever reason like what happened to myself and @johnbishop. My symptoms started in the bottom of my feet and progressed past my waist. Now my feet are nearly completely numb but it’s certainly better than all the horrible painful sensations I had for so many years. Hopefully your neuropathy will improve as well.
Jake

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Apart from my neuropathy my main problem is my bladder . Have had UTI post surgery because of catheterisation 3 months later still suffering . This whole experience is terrible wish I had never had the surgery . Feeling suicidal can any one help and advise ..?

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@anita1940

Apart from my neuropathy my main problem is my bladder . Have had UTI post surgery because of catheterisation 3 months later still suffering . This whole experience is terrible wish I had never had the surgery . Feeling suicidal can any one help and advise ..?

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@anita1940
Hello Anita,
you’ve probably already found this thread on perineural or tarlov cysts but just in case not here it is,
https://connect.mayoclinic.org/discussion/perineural-or-tarlov-cysts/
Jake

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