Anastrozole and bladder pain

Went back to the Urogyn today for a cystoscopy (where they look inside your bladder). The good news, no cancer. The not so good news, it is very inflamed (I saw it on the screen) and she officially diagnosed Interstitial Cystitis. Once my Oncologist gets the result I can get her assessment and ask about other AIs. Since it is right now under control, I will continue what I've been doing and look at other dietary changes I can make that might help. In 3 weeks the Urogyn will relook at bladder function (which won't require a cystoscopy). If another major flareup happens, there is Elmiron, a drug for IC. So that's something that could be tried if I reach that point. Maybe I will or won't. At least I have some next steps - sometimes that's all you need to power through another week or month. All the best.

I got hemmoragic cytstis during treatment. It was like a UTI but worse. The discomfort continued after treatment. I had two bladder biopsies both negative. I had a an ultrasound both internal and external. They found my bladder wall thickened. I have incontinence too. I take Vesicare for that. They said the bladder wall thickness come with age. I am 72. The biggest issue I have is intercourse but that too seems to be getting better. The cystitis is from my chemo. My do said that the cytocin is probably the cause.

@lucillem72 Thank you, this is helpful. I had 4 rounds of Cytoxan as part of my treatment 3.5 years ago, but the bladder pain came on mostly in the past year. I'll have to ask my doctor about this. I'm sorry you've suffered from it too. How recent was your treatment? And have any meds (or anything) worked for the bladder pain? Best, Virginia

The hemmoragic cytstis started after my chemo and cytocin. I did antibiotics and my Urologist did a treatment where a catheter with saline solution was inserted in the bladder and you rolled on all 4 sides of your body. It was for 20 mins 5 mins on each side. It helped a little. I have had 2 biopsies and all is okay. I am better now but being 72 it's aging that has also thickened the bladder wall. Anastrozole also also gives you some menopausal effects. I will see the urologist Tuesday to see how it is. I do use a non- estrogen vaginal suppository which is helping. It was from a company called Bonafide. I wish you luck with yours.💕🙏
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Funny you should post this. I recently went toy urologist and my urine sole was cloudy. I had suffered from hemmoragic cytstis during cancer treatment. The sole came back negative. I asked her about Anastrozole she said it wasn't a cause but I have blood in my urine, pain in my groin and feel uncomfortable. I am not sure who to go to next.

I believe that since a Anastrozole gives you menopause symptoms I think it might be the cause of the thickening of the bladder my cytstis. I am going to ask my oncologist and Gynecologist . Will let you know what I find out.

I have had 2 urine tests and both were negative. I still have the discomfort and I am going to have the catheter with saline to try and relieve the inflammation. My urologist still believes it is from the Cytocin. I am also using Reversal, by Bonafide, as a way to help the dry vagina. The Reversal can be purchased on line.

Made a mistake in spelling Revaree made by Bonafide.

I know what you mean. I have only started Anastrozole. I had hemmoragic cyctitis from Chemo. I have had 2 biopsies, did IC treatment for four weeks. I was good for awhile and now it's returned. I am having an IC treatment today. I am also very incontinent. But the UTI feeling is horrible.

Went to the urologist today for an IC treatment and asked questions about Anastrozole. It seems that if you had Cancer and are older it blocks estrogen. And since I am 72, had a hysterectomy, plus cancer that was estrogen receptive the bladder discomfort could last forever. I asked the urologist if this herbal suppository, Revaree, can be used by me. It did help with itching and burning. She said yes I could. The Company is Bonafide.