Lung Transplant Post-op? would like to hear positive stories

Hello Hello Hello I want to live close to Mayo so I can visit everyday with patients, I had a Bi-lateral lung transplantAugust 21 2015 it doesnt feel like it has been that long getting close to being an old timer. In 5 months I will be a 5 year survivor my diagnosis was pulmonary fibrosis and emphysema. I was 62 years old when diagnosed and 63 when transplanted, I was hospitalized for the reason my disease progressed very quickly and my oxygen requirements could no longer be met at home 30 days after being admitted a donor was found my first grand daughter was born 4 days after transplant , life is grand , I love to share my experiences ,in fact I told my story at the North Dakota Respirtory Therapist convention 235 of them and me , so please contact me to share your adventure or if you questions I will be glad to talk with you

Update : because of the virus my husbands transplant evaluation at Emory had been placed on hold. His final appointments and test have been postponed until June 🤞🏼

Update : because of the virus my husbands transplant evaluation at Emory had been placed on hold. His final appointments and test have been postponed until June 🤞🏼

Hello Hello Hello I want to live close to Mayo so I can visit everyday with patients, I had a Bi-lateral lung transplantAugust 21 2015 it doesnt feel like it has been that long getting close to being an old timer. In 5 months I will be a 5 year survivor my diagnosis was pulmonary fibrosis and emphysema. I was 62 years old when diagnosed and 63 when transplanted, I was hospitalized for the reason my disease progressed very quickly and my oxygen requirements could no longer be met at home 30 days after being admitted a donor was found my first grand daughter was born 4 days after transplant , life is grand , I love to share my experiences ,in fact I told my story at the North Dakota Respirtory Therapist convention 235 of them and me , so please contact me to share your adventure or if you questions I will be glad to talk with you

@abmac
I am sorry, too, that he has to wait until June. I think it is best that they did this. I had my annual eval scheduled for late April, and it has been postponed until June.
Like, @jolinda, I wonder about how the transplant centers are managing their transplant procedures. My best guess it that transpants are among the highest priority essential procedures.

I would like to share this information with you and your family.
Pages >Transplant > Specific Information about COVID-19 for Transplant Patients
https://connect.mayoclinic.org/page/transplant/newsfeed-post/specific-information-about-covid-19-for-transplant-patients/

I too normally have my annual checkup in April, but have not heard anything yet for this year. I have called twice to the transplant department and still have not heard back. I had requested a June appointment months ago for other reasons.

@jerrynord, Are you on the patient portal? Why don't you send a Non-Urgent Message to your transplant coordinator. When I sent a message early this week there was a note that it could be a 2 -4 day.
Be safe.

I too normally have my annual checkup in April, but have not heard anything yet for this year. I have called twice to the transplant department and still have not heard back. I had requested a June appointment months ago for other reasons.

I had an appointment for April 12-13 for my annual checkup. Mayo called and we changed it to May 12-14. I was able to get the money for my prepaid hotel room back. Now, I’m hesitant to rebook, since the May appointment may be also be postponed. My daughter ( the donor) always comes with as well as my husband, who has moderate dementia. I will need someone with for the biopsy. There is no where for my husband to go and he shouldn’t be alone. I hope they’ll make an exception for him to be with.