PERLAK - zapalenie ucha środkowego

Posted by michalbajer @michalbajer, Feb 26, 2020

Witam, mój 13 letni syn jest po kilku operacjach ucha środkowego, ostatnia operacja była operacją radykalną , oznacza to usunięcie ucha środkowego, niestety na wyrostku sutkowatym cały czas zbiera się ziarnina zwana perlakiem, którą trzeba usuwać co trzy miesiące , często pod narkozą ponieważ to bardzo boli, powoduje wymioty i omdlenia. czy ktoś z Państwa ma jakieś doświadczenia w tym temacie i mógłby mi pomóc , może jest jakaś metoda wyleczenia tego schorzenia, może znacie lekarza z którym należałoby się skontaktować. Pozdrawiam

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ZeeGee | @fourof5zs | Feb 27, 2020

I put this post in a translator... and probably not the greatest translation. Polish I believe. I cannot offer any other help.

PERLAK - otitis media

Hello, my 13-year-old son is after a few operations on the middle ear, the last operation was a radical operation, this means the removal of the middle ear, unfortunately the granular tissue called cholesteatoma accumulates on the mastoid process, which needs to be removed every three months, often under anesthesia because it is very it hurts, causes vomiting and fainting. if any of you have any experience in this topic and could help me, maybe there is a way to cure this disease, maybe you know a doctor who should be contacted. Regards

michalbajer | @michalbajer | Feb 28, 2020

dziękuję i serdecznie pozdrawiam

Lisa Lucier, Moderator | @lisalucier | Mar 7, 2020

Hi @michalbajer, I used Google translate to read your post. I don't speak Polish, unfortunately. Perhaps you can use Google translate to read my message as well. https://translate.google.com/

It sounds as though your son had a a radical mastoidectomy. Members like @mgarthwait12 @squaredancer @imallears @lioness @johnbishop may be familiar with the surgery as well as the cholesteatoma accumulation you described and the need to remove it every 3 months. They may have some experience with this operation to share or be aware of others who have had this and have input to offer.

What was his diagnosis prior to the mastoidectomy?

John, Volunteer Mentor | @johnbishop | Mar 7, 2020

Hello @michalbajer, I'm not sure if you can translate the following sites but they may provide some helpful information for you.

Cholesteatoma and Its Management -- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4575657/
Cholesteatoma -- https://www.mountsinai.org/locations/center-hearing-balance/conditions/cholesteatoma

michalbajer | @michalbajer | Mar 8, 2020

In reply to @lisalucier "Hi @michalbajer, I used Google translate to read your post. I don't speak Polish, unfortunately. Perhaps..." + (show)

TAK, DZIĘKUJĘ , Mój syn miał właśnie radykalną operację, dziękuję za pomoc. Sprawdzę co o tym piszą osoby, które mają doświadczenie. pozdrawiam serdecznie.