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Lichen Planopilaris...newly diagnosed

Skin Health | Last Active: Aug 1 2:55pm | Replies (92)

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@erikas

@siroisjli Welcome to Mayo Clinic Connect, a place to give and get support.

You are diagnosed with Lichen Planopilaris and looking for, "cold cap," that are typically used for cancer patients. You are also using other treatments that are working for your symptoms. You have already connected with members like @tsafer @fdixon63 and members @ginyer @lorrainechavez @nets2020 @siroisjli @pat68 @lfj9487 @joy4trees @fdixon63 also experience with this topic.

May I ask if your provider informed you of the therapies or did you find the information elsewhere?

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Replies to "@siroisjli Welcome to Mayo Clinic Connect, a place to give and get support. You are diagnosed..."

Not my provider: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7090134/ trial results this was for the light cap. The cold cap was something I thought would help with the pain since cold water improves the pain for a few min. at least.