1. < Autism (ASD)
Mentor

How You Experience Autism

Posted by Ginger, Volunteer Mentor @gingerw, Jan 8, 2020

I came across this article today, posted on The Mighty. I "get" it, as it is familiar to me. How do you react to her vision of the manifestation in her life?
https://themighty.com/2016/04/what-does-autism-feel-like/
Ginger

Interested in more discussions like this? Go to the Autism (ASD) Support Group.

sirgalahad | @sirgalahad | Feb 25, 2020
In reply to @mamacita "@sirgalahad, they are doing all of that. Once again, you are on top of it! Love..." + (show)
@mamacita

@sirgalahad, they are doing all of that. Once again, you are on top of it!
Love and light,
Mamacita Jane

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bear hugs and loves have they put a drainage tube into her lungs where they could gently wash some of the crap out

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sirgalahad | @sirgalahad | Feb 25, 2020
In reply to @mamacita "@sirgalahad, @lioness, @gingerw, and all my loving friends here. She still has the ventilator in, she..." + (show)
@mamacita

@sirgalahad, @lioness, @gingerw, and all my loving friends here. She still has the ventilator in, she is taking Xanex, to help with her anxiety, and she is lightly sedated. The lung doctor is optimistic and says there's no reason for us to be anything less than optimistic.

More later.
Love and light
Mamacita Jane

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loves and hugs

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sirgalahad | @sirgalahad | Feb 25, 2020
In reply to @hopeful33250 "@mamacita I'm so glad that you were able to squeeze in some moments of normalcy! You..." + (show)
@hopeful33250

@mamacita I'm so glad that you were able to squeeze in some moments of normalcy! You do deserve it. You are right, that we don't know what the next moment will bring, but keep caring for yourself, we want you to stay well and grounded. We love and appreciate you, @mamacita!

@sirgalahad I so appreciate the helpful ideas you could provide to @mamacita, to help with her daughter's meds! You are a good friend to so many.

@gingerw Your kind words of encouragement are always appreciated!

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huggies Teresa

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sirgalahad | @sirgalahad | Feb 25, 2020
In reply to @hopeful33250 "What a lovely thought! This came from your work experience as well as from your heart,..." + (show)
@hopeful33250

What a lovely thought! This came from your work experience as well as from your heart, @lioness

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gorgeous thought

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Mamacita, Alumna Mentor | @mamacita | Feb 26, 2020

Good morning @merpreb, @ lisalucier, and @gingerw , thank you all for your prayers and good thoughts for my daughter.

My husband has a doctor's appointment today so I am home today. I wish I wasn't so exhausted. I wish I was still there with her. I know I don't have to be with her every single moment. But I want to be.

I hope and pray that the recovers from all of this. I will be the happiest mom alive if she is able to get out of ICU and placed in a regular room.

It's hard to not loop the negative thoughts that want to run rampant through my thought process.

When I am at the hospital it is easier for me to handle.

Love on your people today. Check on your friends. We all need each other.

Love and light,
Mamacita Jane

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2 replies
Merry, Alumni Mentor | @merpreb | Feb 26, 2020

JAne- It is exhausting. When my sister was in the ICU it was terribly exhausting. But the nurses were there to answer questions and we could see her. That was the big thing for me. Take today to rest, even if your brain won't shut off. Order in a meal. Take care of yourself! xxoo

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Mentor
Ginger, Volunteer Mentor | @gingerw | Feb 26, 2020
In reply to @mamacita "Good morning @merpreb, @ lisalucier, and @gingerw , thank you all for your prayers and good..." + (show)
@mamacita

Good morning @merpreb, @ lisalucier, and @gingerw , thank you all for your prayers and good thoughts for my daughter.

My husband has a doctor's appointment today so I am home today. I wish I wasn't so exhausted. I wish I was still there with her. I know I don't have to be with her every single moment. But I want to be.

I hope and pray that the recovers from all of this. I will be the happiest mom alive if she is able to get out of ICU and placed in a regular room.

It's hard to not loop the negative thoughts that want to run rampant through my thought process.

When I am at the hospital it is easier for me to handle.

Love on your people today. Check on your friends. We all need each other.

Love and light,
Mamacita Jane

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@mamacita Your dedication to your family remains, even if you are not right there. The medical team knows this "mama bear" lurks just around the corner ;)) Like @merpreb said, take time today to recharge, give that teen some love-with-a-hug, too.
Ginger

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1 reply
Mamacita, Alumna Mentor | @mamacita | Feb 26, 2020

@merry, Volunteer Mentor, thank you so much for your encouraging words.

I haven't posted much lately about Autism. So, here's a connecion I would like all my friends here on Connect to check out.

Child Mind Institute.org. I went to their site and read that they do absolutely no negative reinforcement whatsoever.

Only positive reinforcement.

Exactly what we did here back in 90's.

We did not like what we were seeing coming from the ABA protocol down in another state adjacent to us.

Children on the Spectrum have enough trauma to deal with. They dont need more when parents are attempting to change certain behaviors by teachers and therapists.

If you have questions about why we #actually autistic individuals by and large do not have fondness in our hearts regarding strict forms of ABA, you might check out SupportyMcGroupface on Facebook. Or Actually Autistic. Or just Google ABA and learn what it involves.

People on the Spectrum routinely deal wirh depression and anxiety mainly because of the hypervigilence, the extreme sensitivity in all areas, and the lack of understanding and acceptance from even the "professionals."

Have a blessed day, my friends.
Love and light,
Mamacita Jane

REPLY
1 reply
Merry, Alumni Mentor | @merpreb | Feb 26, 2020
In reply to @mamacita "@Merry, Volunteer Mentor, thank you so much for your encouraging words. I haven't posted much lately..." + (show)
@mamacita

@merry, Volunteer Mentor, thank you so much for your encouraging words.

I haven't posted much lately about Autism. So, here's a connecion I would like all my friends here on Connect to check out.

Child Mind Institute.org. I went to their site and read that they do absolutely no negative reinforcement whatsoever.

Only positive reinforcement.

Exactly what we did here back in 90's.

We did not like what we were seeing coming from the ABA protocol down in another state adjacent to us.

Children on the Spectrum have enough trauma to deal with. They dont need more when parents are attempting to change certain behaviors by teachers and therapists.

If you have questions about why we #actually autistic individuals by and large do not have fondness in our hearts regarding strict forms of ABA, you might check out SupportyMcGroupface on Facebook. Or Actually Autistic. Or just Google ABA and learn what it involves.

People on the Spectrum routinely deal wirh depression and anxiety mainly because of the hypervigilence, the extreme sensitivity in all areas, and the lack of understanding and acceptance from even the "professionals."

Have a blessed day, my friends.
Love and light,
Mamacita Jane

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Jane- Thank you. Very interesting. Does it work on all children? I have a nephew who I believe has been on the spectrum for many years but has not registered as such with tests. He's probably had more tests than I ever will, poor guy.

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1 reply
sirgalahad | @sirgalahad | Feb 26, 2020
In reply to @mamacita "Good morning @merpreb, @ lisalucier, and @gingerw , thank you all for your prayers and good..." + (show)
@mamacita

Good morning @merpreb, @ lisalucier, and @gingerw , thank you all for your prayers and good thoughts for my daughter.

My husband has a doctor's appointment today so I am home today. I wish I wasn't so exhausted. I wish I was still there with her. I know I don't have to be with her every single moment. But I want to be.

I hope and pray that the recovers from all of this. I will be the happiest mom alive if she is able to get out of ICU and placed in a regular room.

It's hard to not loop the negative thoughts that want to run rampant through my thought process.

When I am at the hospital it is easier for me to handle.

Love on your people today. Check on your friends. We all need each other.

Love and light,
Mamacita Jane

Jump to this post

paw hugs dear rest and recharge today and do something really nice for you today or yesterday lubs u

REPLY
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