How You Experience Autism

Posted by Ginger, Volunteer Mentor @gingerw, Jan 8, 2020

I came across this article today, posted on The Mighty. I "get" it, as it is familiar to me. How do you react to her vision of the manifestation in her life?
https://themighty.com/2016/04/what-does-autism-feel-like/
Ginger

Interested in more discussions like this? Go to the Autism (ASD) Support Group.

sirgalahad | @sirgalahad | Feb 25, 2020

In reply to @mamacita "@sirgalahad, they are doing all of that. Once again, you are on top of it! Love..." + (show)

bear hugs and loves have they put a drainage tube into her lungs where they could gently wash some of the crap out

sirgalahad | @sirgalahad | Feb 25, 2020

In reply to @mamacita "@sirgalahad, @lioness, @gingerw, and all my loving friends here. She still has the ventilator in, she..." + (show)

loves and hugs

sirgalahad | @sirgalahad | Feb 25, 2020

In reply to @hopeful33250 "@mamacita I'm so glad that you were able to squeeze in some moments of normalcy! You..." + (show)

huggies Teresa

sirgalahad | @sirgalahad | Feb 25, 2020

In reply to @hopeful33250 "What a lovely thought! This came from your work experience as well as from your heart,..." + (show)

gorgeous thought

Mamacita, Alumna Mentor | @mamacita | Feb 26, 2020

Good morning @merpreb, @ lisalucier, and @gingerw , thank you all for your prayers and good thoughts for my daughter.

My husband has a doctor's appointment today so I am home today. I wish I wasn't so exhausted. I wish I was still there with her. I know I don't have to be with her every single moment. But I want to be.

I hope and pray that the recovers from all of this. I will be the happiest mom alive if she is able to get out of ICU and placed in a regular room.

It's hard to not loop the negative thoughts that want to run rampant through my thought process.

When I am at the hospital it is easier for me to handle.

Love on your people today. Check on your friends. We all need each other.

Love and light,
Mamacita Jane

Merry, Alumni Mentor | @merpreb | Feb 26, 2020

JAne- It is exhausting. When my sister was in the ICU it was terribly exhausting. But the nurses were there to answer questions and we could see her. That was the big thing for me. Take today to rest, even if your brain won't shut off. Order in a meal. Take care of yourself! xxoo

Ginger, Volunteer Mentor | @gingerw | Feb 26, 2020

In reply to @mamacita "Good morning @merpreb, @ lisalucier, and @gingerw , thank you all for your prayers and good..." + (show)

@mamacita Your dedication to your family remains, even if you are not right there. The medical team knows this "mama bear" lurks just around the corner ;)) Like @merpreb said, take time today to recharge, give that teen some love-with-a-hug, too.
Ginger

Mamacita, Alumna Mentor | @mamacita | Feb 26, 2020

@merry, Volunteer Mentor, thank you so much for your encouraging words.

I haven't posted much lately about Autism. So, here's a connecion I would like all my friends here on Connect to check out.

Child Mind Institute.org. I went to their site and read that they do absolutely no negative reinforcement whatsoever.

Only positive reinforcement.

Exactly what we did here back in 90's.

We did not like what we were seeing coming from the ABA protocol down in another state adjacent to us.

Children on the Spectrum have enough trauma to deal with. They dont need more when parents are attempting to change certain behaviors by teachers and therapists.

If you have questions about why we #actually autistic individuals by and large do not have fondness in our hearts regarding strict forms of ABA, you might check out SupportyMcGroupface on Facebook. Or Actually Autistic. Or just Google ABA and learn what it involves.

People on the Spectrum routinely deal wirh depression and anxiety mainly because of the hypervigilence, the extreme sensitivity in all areas, and the lack of understanding and acceptance from even the "professionals."

Have a blessed day, my friends.
Love and light,
Mamacita Jane

Merry, Alumni Mentor | @merpreb | Feb 26, 2020

In reply to @mamacita "@Merry, Volunteer Mentor, thank you so much for your encouraging words. I haven't posted much lately..." + (show)

Jane- Thank you. Very interesting. Does it work on all children? I have a nephew who I believe has been on the spectrum for many years but has not registered as such with tests. He's probably had more tests than I ever will, poor guy.

sirgalahad | @sirgalahad | Feb 26, 2020

In reply to @mamacita "Good morning @merpreb, @ lisalucier, and @gingerw , thank you all for your prayers and good..." + (show)

paw hugs dear rest and recharge today and do something really nice for you today or yesterday lubs u

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