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Low Dose Naltrexone and Neuropathy

Neuropathy | Last Active: Apr 30 8:05pm | Replies (129)

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@patrick17

@sunnyflower What a nice name you use! I had never heard of Parsonage Turner syndrome either. It is somewhat rare. I was seen by several doctors before one of them, a neurologist, diagnosed it. I even had surgery on my neck which I probably didn’t need because it didn’t help my condition. I wish I could have a “do over” on the surgery. Perhaps the surgeon had never seen anyone with Parsonage Turner syndrome. Thanks for your kind words and thoughts! I wish you healing as well.
Patrick

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Replies to "@sunnyflower What a nice name you use! I had never heard of Parsonage Turner syndrome either...."

Thanks for your kind words Patrick. I'm sorry to hear your surgery didn't help! Whatever you do, get a 2nd opinion if you do decide to proceed w/ a potential re-do. I'm doing that now w/ 2 neurosurgeons for my "severe" spinal stenosis. I keep being told I'm very high risk. Ug. Fondly, Sunnyflower