I have never used it, but filled the script written by Pain Management on two different occasions. I was desperate for pain relief and my PM Drs suggested I try it. Plus they disagreed with opiod use. Insurance would not cover because it's off label, non FDA approved. I had it compounded at my local compounding pharmacy. It cost about $50 each time out of pocket. It is not supposed to be used with opiods but I learned from the pharmacist that it can be used in conjunction but, the opiod must be spaced 6 hours apart from LDN at night. My pain never allowed this spacing and I felt I was too far gone to get anything out of it. Linda on the other hand does not take opiods so I'd say give it a try. She may be able to benefit from her body creating it's own natural opiods with help from LDN. Lori gave it a try but not sure her final outcome.

@jesfactsmon Hi again, Hank! I used the low dose Naltexone for about 2 months. It is written that it should be used at least this amount of time for it to work. It does not always work at the beginning. My experience with it seemed promising for about 1 month. My pain seemed to lesson, and I put off my DRG trial. However, after the first month, it just stopped working. I took it for at least a month more, and pain was severe the whole time. There is good research on it, but only about 25 to 40% of people trying it, reap benefits. It is certainly worth a try!!!! Especially if you see Linda is interested! Love to you both, Lori

I have been taking LDN for nearly four months. I have a condition known as Parsonage Turner syndrome which causes severe nerve pain in both hands and my right forearm. I began with 0.5 mg of LDN and have slowly increased it to 2.5 mg. So far it hasn’t helped me. I plan to keep working my way up to at least 4.5 mg to see if I will find an effective dose. I make my own LDN from a 50 mg tablet so it is very inexpensive to use and it gives me flexibility when changing doses.