Meet others living with autism: Come say hi

Posted by Lisa Lucier, Moderator @lisalucier, Dec 19, 2019

Welcome to the Autism group on Mayo Clinic Connect.

Living with autism spectrum disorder (ASD) may have many aspects in common with neurotypicals, but also some uniquenesses. Whether you are someone diagnosed with ASD, or are living with or caring for someone with ASD, let’s connect.

I’m Lisa, and I am the moderator of this group. I look forward to hearing about the lens through which you look at life, your experiences, and what comes easily to you and what presents difficulties. Perhaps you or your loved one has been misunderstood or even mistreated by others, or maybe you have heightened senses that bring you much joy. Whatever your story, I encourage you to share it openly and frankly, and also provide compassion and a place of safety for others touched by autism.

I’d love to welcome you and introduce you to other members. Feel free to browse the topics or start a new one.

Have a seat in a comfy chair, grab a cup of coffee or a beverage you like, and let’s chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Autism (ASD) Support Group.

@mamacita

@sirgalahad Stuman is some better with the steroids. Not much. I had to cut his steak at lunch at the Texas Roadhouse. It was delicious.

We have the next week to look forward to more test results and possibly a Rheumatologist.

As you can tell Sir I am reading Neurotribes. It is a fascinating look into the "history" of neurodivergence.

Today was my birthday hence the traditional trip to our local steakhouse. Keto birthdays do not involve rolls or baked potatoes. But it was still fun

Looking forward to our time here this new year.
Love and light
Mamacita Jane

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@mamacita Glad to hear your birthday was a semi-happy experience. And hoping you and your husband get some definitive answers to his hand issue, soon.
Ginger

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@mamacita

@sirgalahad Stuman is some better with the steroids. Not much. I had to cut his steak at lunch at the Texas Roadhouse. It was delicious.

We have the next week to look forward to more test results and possibly a Rheumatologist.

As you can tell Sir I am reading Neurotribes. It is a fascinating look into the "history" of neurodivergence.

Today was my birthday hence the traditional trip to our local steakhouse. Keto birthdays do not involve rolls or baked potatoes. But it was still fun

Looking forward to our time here this new year.
Love and light
Mamacita Jane

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Happy belated! Celebrate again today, because you can.

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@sirgalahad

happiest happiest birthdays dearest Mamacita

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Rounding that corner to 70!!!

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@gingerw

@mamacita Glad to hear your birthday was a semi-happy experience. And hoping you and your husband get some definitive answers to his hand issue, soon.
Ginger

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Thanks @gingerw. I really do value my blood sugar numbers more than I do enjoying a fresh baked roll and baked potato. My A1C needs to get lower and I need to lose a bunch more weight. Best way for me to do that is to restrict my carby ways that got me in this situation in the first place.

Aside from all that it was a truly happy birthday. Low key but how I like it.
Love you sissor!
Mamacita Jane

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@auntieoakley

Happy belated! Celebrate again today, because you can.

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@auntieoakley I just might do that!!!!
Thanks!
Lubs
Mamacita Jane

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@sirgalahad

autism is part of a larger group of Neurodiverse conditions and we all have linkage through changes in biochemistry, hormonal impacts, stressors, comorbidities and impact from the brain being made during the birth. We have links to OCD ADHD, CLINICAL DEPRESSION SCHITSOPHRENIA. We are all linked by changes in electrical circuitry, hormonal and biochem and nerve synapses and the changes in neurons sending signals and excitability and in us extreme temperatures.

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@sirgalahad
When I figured out my supersonic hearing was making me sick I started using ear plugs in the morning even when taking a shower. The bathroom is right close to the heating and cooling unit and I was in agony and didnt even realize it.

Is it any wonder so many of us have all these comorbidities when our systems are basicslly on fire?

And my lifelong depression?

Textbook case of difficult to treat. I now have to take a folate supplement every day to help.

It works.
Lubs
Mamacita Jane

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@mamacita

@sirgalahad
When I figured out my supersonic hearing was making me sick I started using ear plugs in the morning even when taking a shower. The bathroom is right close to the heating and cooling unit and I was in agony and didnt even realize it.

Is it any wonder so many of us have all these comorbidities when our systems are basicslly on fire?

And my lifelong depression?

Textbook case of difficult to treat. I now have to take a folate supplement every day to help.

It works.
Lubs
Mamacita Jane

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@mamacita Wow! You can use ear plugs with no problems? I only use them under one circumstance and that is when I am using firearms. Earplugs to drown out noise or to calm myself down to sleep, hearing my own breathing, drives me over the edge. There are so many times my husband doesn't understand the extreme sensitivity of my senses of touch, hearing and taste, nor the ability to see the slightest changes in color shades. That last one deals me well in my craft endeavors with fabric and yarn, and was appreciated when I worked in the commercial sewing thread industry. I have long said that with my autoimmune conditions, basically my body is at civil war with itself, but now I am just realizing that civil war goes beyond the physical and also involves the emotional/mental operating systems on a daily basis. Ah, the things we learn here on Mayo Connect with other people in the same trenches as us!
Ginger

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@gingerw

@mamacita Wow! You can use ear plugs with no problems? I only use them under one circumstance and that is when I am using firearms. Earplugs to drown out noise or to calm myself down to sleep, hearing my own breathing, drives me over the edge. There are so many times my husband doesn't understand the extreme sensitivity of my senses of touch, hearing and taste, nor the ability to see the slightest changes in color shades. That last one deals me well in my craft endeavors with fabric and yarn, and was appreciated when I worked in the commercial sewing thread industry. I have long said that with my autoimmune conditions, basically my body is at civil war with itself, but now I am just realizing that civil war goes beyond the physical and also involves the emotional/mental operating systems on a daily basis. Ah, the things we learn here on Mayo Connect with other people in the same trenches as us!
Ginger

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Oh my sweet sister @gingerw
Let me tell you.
The difference is like night and day.

I would do better with superexpensive headphones yet cannor afford them presently.

When I realized how devastating sound is to me especially in the early mornings I had to make a decision.

And wear them I do.

They are grossly uncomfortable and if it were my child I would just go ahead and get the $500 headphones.

After two or three hours usage I am desperate to remove them.

And remove them I do.

What must our ASD children feel when they cannot express to us "It's TOO LOUD OUT THERE!!!"

Anxiety comes from untreated trauma. Among other things.

Lord help us hear the cries of our brothers and sisters who are in pain.
Love and light
Mamacita Jane

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@gingerw
This is for the Mama out there who has a little boy or girl who is in first or second grade.

Your friends your mil your husband even are telling you that you are raising your baby all wrong.
You are spoiling that child and all he/she needs is discipline.
Your little one screams and cries and has a meltdown every time she is forced to attend assembly in the school gym.

Every morning without fail she sits there with her class as long as she can.
Pledge of alleigance and morning notes and the schedule for the week.

Other kids enjoy this time of day.
It gets them off to a good start.

Not your child.

What is wrong with you?

What is wrong with him?

Remember me talking about the need for ear plugs and headphones ?

There's nothing wrong with you Mama.
There's norhing wrong with your baby.
Its time to start listening to what your child is trying to tell you the only way they know how.

I was that child in the mystical sense of empathy felt for another woman's child. I know how loud this society is to a precious soul who needs loud noises kept at bay and on their own terms.

Your child has no clue that the others in that room do not hear what she hears.
And most of the teachers have no clue that your child has superior hearing that picks up every...single...thing.

We are beginning to learn though.
We are beginning to see that these are not strict behavior issues as such but symptoms of what is going on in that little person's body.

It's going to be ok Mama.
There's nothing wrong with you. You are doing a good job. Hug that baby for us.
We are all learning together here.
We are better together.
Love and light
Mamacita Jane

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@mamacita

@lisalucier
Somewhere along the line a few brilliant investigators (names vary but I will supply them) had decided they were not satisfied with the staus quo or the "party line" where it concerns Autism or ASD.

Not satisfied with labelling children as well as adults as "disabled " simply because they appeared to have some behavioral issues inbolving the senses. "Sensory" issues.

Not satisfied at all as a matter of fact because many of these same children myself included tested at genius level in widely varying areas.

Disabled. Or genius. Could it be both? Even in the same person? Yes. And yes.

Some brilliant neuroscientists decided to investigate this issue. What they concluded was that the "Neurotypical " brain and the "Neurodivergent " brain are basically two different operating systems. Think machines.

The majority of Earth's inhabitants fall into the typical category. Some of us ( yay whoo hoo over here !) find ourselves in the divergent category.

As Temple Grandin says "Not less than but different. "

As my first boyfriend said after I'd had dinner with his family....after I had asked him what they thought about me...

Well they liked you.
But they rhink you're different.

Ok. I should have had a clue right then and there.

To be continued....
Love and light
Mamacita Jane

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Hello @mamacita, If you are different, as some say, it should be added that you are delightfully-different. You provide me with an insight into the world that I lacked before reading your posts. Thank you for that!

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