Vitamin B12 and Neuropathy

Ive taken B12 injections (once a month) for about 3 years now. My count goes up but to tell the truth, i dont feel any different, energy wise.

I did not receive any notifification for this post. I found it by accident. Thanks John but I don't think I am getting it I am on chrome laptop. I wrote everything down and will try again. Why did I not receive notification for this post and others I wrote to for help?? I am stillmconfused. I have tried every night and don't know if I should just drop out. I would have nerver got your directions if not by accident. Feelmsomething is wrong. Thanks very much John. trishj46

in reply to JohnBishop------I just posted a reply to you on answering my questions---I never got a post from you about that---found it by accident. After I read andv wroite down your directions
I sent reply and it just dissappeared--! I do not get it so maybe I should just drop out out.
I will tryb all the directions but don't bthink I follow! Thanks very much. Hope you get post. I am on chrome laptop. trishj46

Maybe the replies to your post went to spam. That's what has happened to me with xfinity. I had to remove my spam filter which is a hassle but I'm getting the posts now.

Hi @trishj46,

Here are a few basic step-by-step directions you can try; I’m sure @johnbishop or @colleenyoung will post more details soon:
1. In your internet browser, type connect.mayoclinic.org
2. On the Connect homepage, click on GROUPS ( https://connect.mayoclinic.org/groups/ )
3. Scroll through the groups, click on Neuropathy ( https://connect.mayoclinic.org/group/neuropathy/ )
4. Scroll through the discussions and click on any of the titles to read that particular discussion. For instance clicking on discussion titled, VITAMIN B12 and Neuropathy
will take you to https://connect.mayoclinic.org/discussion/vitamin-b12-and-neuropathy/

Within a discussion thread, you can decide to read messages/posts from oldest to newest (chronological order) or newest to oldest (reverse chronological order).

Since you also mentioned you didn’t get notification of John’s posts, here are some additional instructions:

Control when and how often Mayo Clinic Connect sends email notifications to you. You can change your notification preferences any time. https://connect.mayoclinic.org/get-started-on-connect/
1. Go to your Account Settings.
2. Click your avatar in the top right and select Account Settings.
3. Scroll down to Email Notifications.
4. Click +Edit beside each category and choose to receive email notifications for each post, in your digest only or to unfollow.
– Posts: You can turn on or turn off to receive a notification when someone likes a post you’ve made or when a member @mentions you in a post. (Recommended to keep on.)
– Groups: Follow Groups that interest you. Choose how you wish to be notified about activity in each of the groups you follow.
– Pages: Follow expert Pages (blogs by Mayo Clinic experts) that interest you. You’ll be notified when a new blog post is published (usually weekly or bi-weekly).
– Digest: Choose to receive an email summary of activity from the Groups and Pages that you follow: Daily, Weekly or Never.

@trishj46, I think the issue is your verizon.net email address. Verizon.net got out of the email business Dec 2017 and migrated all of their email services to Yahoo email. I'm pretty sure you are not receiving the Connect email notifications because they are being blocked by your spam filter.

I'm guessing that Verizon is your Internet service provider. If this is the case, I would stop by one of their stores and see if you can get a service rep to help you check your spam filters to see if your connect emails are being blocked.

You mentioned having a Chromebook so you should be able to make a shortcut on your desktop so that you can easily get to Connect. Here's how to do it.

1. Go to Connect: https://connect.mayoclinic.org/
2. Click the 3 vertical dots at the upper right corner of the Google Chrome web browser screen.
3. Select More tools...
4. Select Create shortcut
5. Type Connect in the box (currently will be showing the name of the discussion) or leave the default discussion name.
6. Check the Open as window box - this will make a shortcut on your main desktop screen that you can click on to go to the Connect website.

If you are still not able to figure it out, please use the following form to contact our director @colleenyoung
-- https://connect.mayoclinic.org/contact-a-community-moderator/

I'm also sending this as a private message so that hopefully you will receive one of them.

I had that done also, and it came back no problem. I was really discouraged that there is still no answer. I hope that you have better luck.

I have tried a couple of sites in the past few years in the hope of finding other people with similar medical problems like mine. It turns out that there are very few who are even close. I can live with that. What I hear from everyone though is that they are suffering from pain and there are no real solutions coming from the people who are suppose to be qualified to help. Doctors, research institutions. This is insanity at it’s finest. To top this off is the very thing that tops this off is the stress this causes. This morning and yesterday, I noticed that the replies that I am getting are going to my spam file so I am assuming that my replies to the people who were trying to be helpful that was happening to. Since I most of my spam file I just delete because it has nothing but crap on it. My replies are not crap to me! So I see I am wasting my time again. Very disappointing but I have experienced this before. Blaming Verizon’s bullshit is also crap. I retired a few years ago from that other telephone company. They were always bullshit artists. The organizers of this site are to blame in my opinion. Anyone who has ever had to deal with a major corporation and that includes medical institutions, when it come to people with problems, the don’t give a dam. As a matter of fact they go out of their way to make things worse for people. I have had enough of this an I am leaving this site. My time left in this world is too important to me.

@goldleaf, no offense but spam is a major problem for all Internet service providers. I have worked in the giant tech corp world and I've also worked the last 20 years in a local telco as their Internet helpdesk and computer repair person. You are correct just because some emails go to the spam folder or are blocked from even reaching your inbox doesn't mean the email is spam to the user. Real spam is a major source of virus and phishing emails used for identity theft and the reason why Internet service providers have been beefing up their email spam appliance even though us techies don't like. The organizers of this site do their best but due to the way mail servers work it's an impossible task without help from each user. The purpose of Connect is to help members share their health experiences, ask questions and learn what others are doing to help with their symptoms.

Hopefully we can help each other when the tech problems arise for members without blaming the site or others. As far as the Verizon BS, the truth is what it is.... https://www.verizon.com/support/residential/email

@trishj46 Hello and welcome. I am Carol, a retired teacher for 45 years, and I am a diabetic 2. When I first found Connect, I had big problems trying to understand the way the site works. I am not a computer person but knew the basics and had courses and instructional meetings since all of the teachers had computers. This kept me up to date, but when I retired, I didn't bother to stay up to date with technology. I was satisfied to email and write letters on Word and make spreadsheets----the usual. Anything more complicated was just that---more complicated. I have been on Connect for three years and I still have to have someone who is tech savvy help me through new steps so that I can participate. Please don't drop out but give the tech members and Mentors a chance to help you get connected. @johnbishop is a master of the computer. He will work with you as long as it takes to help you. There are many others who will help also. @kanaazpereira has posted steps also. There are others. Just have patience. There is probably one little step you are missing and when you hit it, you will have everything you need to communicate with anyone on Connect. I know how you feel, but you can do it. Breathe and step back for a while and then try again.
Carol