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DiscussionDoes anyone have a glomus brain tumor (paraganglioma)?
Brain Tumor | Last Active: Apr 17, 2023 | Replies (18)Comment receiving replies
Replies to "Yeah I have the one by the jugular and the neurosurgeon sent me to a bunch..."
I had radiation for this exact timg 1 year ago. All of your symptoms I have exactly as you have.
For the past year I have been noticing more and more that I am having short turm memory problems. They say it isn't related to my tumor or the radiation. My headaches are still rbe same.
I have lost the nerves that control one vocal cord and half my toung is paralyzed as well.
My headaches are excruciating I wish I had better news for you.
You may be interested in this discussion related to dizziness and vestibular migraines:
- Chronic dizziness and vestibular migraines https://connect.mayoclinic.org/discussion/hello-_-my-name-is-kim-i-am-33-years-old-and/
There are also great discussions about many of the symptoms you talk about in the ENT group (https://connect.mayoclinic.org/group/ear-nose-throat-conditions/) and the Hearing Loss group (https://connect.mayoclinic.org/group/hearing-loss/) for example:
- Meniere's Disease https://connect.mayoclinic.org/discussion/menieres-disease-2/
- Balance issues and hearing loss https://connect.mayoclinic.org/discussion/balance-issues-and-hearing-loss/
- Propriociption https://connect.mayoclinic.org/discussion/propriociption/
That's great that your neurologist scheduled to a second opinion with another neurologist in January. Did she explain why she feels your symptoms are not related to the tumor? What does she suspect?