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@benlam11

I received both organs at the same time (now 5 months ago) from the same donor. I exercised 5 days a week (aqua aerobics, Yoga, Gym, etc.) and was very active. I never had any breathing issues and now it's only when I exert myself. This started with the transplant. Same as you, when I walk uphill, climb stairs,exercises, etc. it's a trigger. When I bring it up with Doctors (even at the Mayo) they just ignore it. I tapered off Prednisone, however now my white blood cell count is at a critical level (even though I feel great) and they placed me back on 5 mg of Prednisone. I'm still required to do blood work every two weeks - and may have to go back to weekly.
I received a prescription for NEUPOGEN two weeks ago, however my PART D prescription plan is a nightmare attempting to get it approved. I will sign up for a Plan next year (especially since they are doubling the price - I guess hoping that most Seniors will not notice it since they are doing it via the deductible).

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Replies to "I received both organs at the same time (now 5 months ago) from the same donor...."

It sounds like your body is doing a lot of adjusting, and that is okay. Be kind to yourself and don't overdo it and give it time to heal and to rest.
We have come to the awareness that I must have had the exercise induced asthma prior to my transplant, and the prednisone could have been masking it until I got off the prednisone. At 5 months out, I can understand that it is not a priority right now.