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tomkrush (@tomkrush)

Transplant List Process Time

Transplants | Last Active: Feb 14, 2020 | Replies (6)

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@morty

I started at Mayo when my GFR was 23. Had a few people tested, denied. I’m now at 13 and dropping. I’ve been on the list, accrued time of over a year. They are not always quick to test “your people“. Sometimes it’s “your person” that is putting off testing. They can only test one person at a time. It’s frustrating. Your people have to be diligent and call often to make sure things are happening.
Not being able to communicate with the donor team is also difficult.
Get “your people” to fill out questionnaire NOW and get going!
I now have to prepare for dialysis. I truly thought I’d be able to avoid this.
I’m still getting out my plea for an altruistic donor. It’s not as easy as it seems.
Good luck!!

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Replies to "I started at Mayo when my GFR was 23. Had a few people tested, denied. I’m..."

Best wishes, Morty. I can truly empathize with you, as I am in a very similar place. I also have been trying to avoid hemodialysis and sharing with others has been so helpful. Have been on the list for 6 months with GFR ranging from 16- 21. My chances for a living donor seem slim right now, Hang in there, as it is always worth it. You are worth it. And it is a transition treatment.