I started at Mayo when my GFR was 23. Had a few people tested, denied. I’m now at 13 and dropping. I’ve been on the list, accrued time of over a year. They are not always quick to test “your people“. Sometimes it’s “your person” that is putting off testing. They can only test one person at a time. It’s frustrating. Your people have to be diligent and call often to make sure things are happening.
Not being able to communicate with the donor team is also difficult.
Get “your people” to fill out questionnaire NOW and get going!
I now have to prepare for dialysis. I truly thought I’d be able to avoid this.
I’m still getting out my plea for an altruistic donor. It’s not as easy as it seems.